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Avatar universal

NO ONE FIELD - NEED IDEAS/HELP

1. GB removed 6/22/07 - Inflammed.  Stll have pain in gallbladder region which travels to back.  Went to see doctor because I was getting flush.  Negative for carcinoid octrotide scan.
2. When I eat  feels like someone is punching me in stomach under sternum where incision made for GB surgery also choking sensation with boring back pain. Still have spasms in stomach and liver region with constant noise.  Whats bothers me is pain in sternum area when I eat.  MRCP, MRI shows nothing but I know different as does wife. Even now as I write this I am in pain.
3. Also what's weird when I lay down feels like blood rushing to head and eyes turn red and get I get flush. Sometimes eyeball actually swells up sometimes upon ingestion of foods and other things.  Have mild bronchiectasis, broncoscopy done next day eye turned red and eyeball swollen. Missed two weeks of work after dinner of pork chops 1 1/2 where eyeball turned red and swelled along with eye socket swelling. Teary eyes, blurry vision at times after I eat.  Glucose fast normal. Haven't been able to lay down and watch  game in months
4. MRA, MRI and CT of chest done for possible Horners 4/4/08.  .  MRI showed non specific hyperintense foci in frontal centrum semiovale and corona radiata. Consistent with microvascular change, Neuro opthatmologist thought insignificant.  MRI done 8/07 showed subcortical foci of increased T2 signal.  Microvascular vs migraine 5 mm subependymal neuroepithelial left lateral ventricle.  Also have neck pain. Work becoming difficult.

Wake up daily with headaches and flush and at times dizzy.. Showed pictures I took of swollen eyeball to opthamologist and neuro opthamologist.  Only option currently is for eye biopsy at Ocular and Immunology Hospital. "It appears to be in no ones field?"
Year ago healthy . Bloods nomal sick for over a year.  Don't know where to turn.  Have had all kinds of test, sypmtoms with no results.  Please help Dad trying to get kids back to Disney. Thank you.
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Avatar universal
I had GB removed in 04.  Was told it could take up to 2 years to get back to normal, never happened.  I never suffered anything with my eyes though, although in one of my hospital stays my one eye did get broken blood vessels (the whole white part of my eye) after a migraine and other pain that I experienced, but I don't believe it swelled.  I suffered with pain ever since with many trips to ER and hospitalzations from pain.  This last one I was admitted with high liver enzymes, jaundice, and many other things.  The pain was excrutiating.  Ended up with impacted stones in CBD at pancreatic head.  Had to have 3 ERCP to clear this.  I had to go to 3 different GI's before everything is OK I think for now.  GB removal does alot of weird stuff to ya.  But I do suffer from migraines also, don't know if this could be related or not.  I would suggest that maybe trying to get a refferal to a good GI.  Make sure to take a list of questions on a piece of paper as they are very rushed and if you don't ask, they won't tell ya.  But don't be surprised if you have to wait a long time for your appointment.  I really hope this helps and I could write a book about pain level charts that don't go high enough, because I have been there.  I have also had the flushing, etc.  Sometimes it stumps docs and they seem to look at you like you have two heads and are making it up.
Helpful - 1
233190 tn?1278549801
MEDICAL PROFESSIONAL
There clearly has been a comprehensive workup, and it is unlikely that I can come up with something that hasn't already been thought of.  

After gallbladder surgery, you may want to consider Sphincter of Oddi dysfunction.  An ERCP with manometry can be considered to exclude this option.  

Carcinoid would be less likely given the negative testing.  

Evaluation of the upper digestive tract can also be done to exclude GERD, an ulcer or inflammation of the stomach or esophagus.  

These options can be discussed with a GI physician, preferably at a major academic medical center.

This answer is not intended as and does not substitute for medical advice - the information presented is for patients education only. Please see your personal physician for further evaluation of your individual case.

Kevin, M.D.
www.kevinmd.com
Helpful - 0

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