Have just completed a full GI workup including colonscopy with mulptiple biopsies /upper endoscopy with biopsies all negative. Cat Scan blood work including ANA CRP workup for ulcerative colitis with one part of it having an "equivical range " Ultrasound of Gallbladder Liver etc. Still having GI symptons cramping bloating constipation alternating with occasional diarrhea.Feeling full early apetite less. Began workup for that and also Fatigue. Could This be Amyliod which isnt seen on the regular biopsies done during the endoscopies, What should I do to rule this out. Thank-you
I agree with Lori707, amyloid is quite uncommon and there are specialists that focus just on treating amyloid patients who you could consider getting a second opinion with.
Dr.Belinda Ng is a cardiologist trained in Amyloidosis. Dr. Ng is the first physician formally trained in Amyloidosis and is a cardiologist trained at Northwestern Memorial Hospital in Chicago, IL. She has performed significant clinical research on amyloidosis at Boston University Medical Center and has seen hundreds of amyloid patients. She's currently practicing in LA, CA. She could advise on the right tests to consider this diagnosis.
I myself just had biopsies of my colon and esophogus for amyloid deposits which came out negative. But it's like looking for a needle in a haystack.
Wondering why you're asking about amyloidosis since it's so rare. Also, did they use congo red stain on the tissues taken? That's very important. Your tissue samples have to stay at the pathology lab for 2 yrs. You might want to consider having them sent to the Mayo Clinic for review and they can return the samples to you. I think it costs $45. My mother had that done. The Mayo Clinic is one of the main places that specialize in amyloidosis as does the Amyloid Boston Clinic in Mass.
There are many reasons for your symtoms that you're explaining.
Waiting for your reply.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.