I just hope no one else has to go through what I have been through and still going. YOU ARE NOT ALONE
cinsue - Find a compassionate doctor who will treat the Pain
I searched the web to find this forum and to ask questions about my wife's pancreatitis. To see, if others are as bad as hers and so far have responded to 3 posts and still have not asked about other "severe" chronic pancreatitis suffers. But you seem to be one.
My wife has had chronic pancreatitis for 3 years and the last three months has had one constant severe attack. Has been on Demerol, now Dilaudid which is much safer 3 out of the last 6 weeks with IV fluids and NPO, nothing by mouth at home on homecare. She is usually in level 6-10 pain and, if lucky, over the last year gets to take our 11 year old daughter out once a month for 4-5 hours, use to be 2-4 times a month but has gotten so much worse. She too feel like she is missing years that will never come again, and she is but, if she feels, at all good, our daughter gets her time. I praise her for that!
She has what I think they call idiopathic because there is not an identifiable cause for it. She never drank, her ducts are fine, open, etc. Had ERCP and lots of other tests, finally a Secretion test at SHANDS Univ. Of Florida clinic and that showed it. But symptoms showed it, once we saw a real specialist in Pancreatitis who could recognize the symptoms.
FIRST, FIRST, FIRST - Find, most likely, a woman internalist, most men of who I am not one of this type, have the compassion of a rock.
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