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delayed gastric emptying
I was just diagonised with "grossly abnormal" gastric emptying and was put on medication. I was just wondering if there are any surgical procedures to help with this. I'm female, 28, not diabetic, and otherwise healthy...exercise and all that good stuff.
A related discussion, gastroparesis was started.
A related discussion, Delayed gastric Emptying was started.
I guess the easiest way to access the group site would be to go to the Yahoo search engine, type in gastroparesis, and a list of links will pop up. On my computer, it was number 11, Yahoo groups; gastroparesis. I think it will walk you through the process. If not, let me know. You can email me at
***@****
if you have any problems getting through, and I can forward it to the right person.
Jo
p.s.
I had side effects from Reglan with just a 5 mg. dose. Only took it one day. As for permanency, I do not know the answer to that; I think it varies. I know people who have been on it for awhile, and have had no side effects. I still think domperidone (Motilium) is the best drug out there. It is like Reglan, but does NOT cross the blood/brain barrier, thus eliminating neurological side effects.
***@****
if you have any problems getting through, and I can forward it to the right person.
Jo
p.s.
I had side effects from Reglan with just a 5 mg. dose. Only took it one day. As for permanency, I do not know the answer to that; I think it varies. I know people who have been on it for awhile, and have had no side effects. I still think domperidone (Motilium) is the best drug out there. It is like Reglan, but does NOT cross the blood/brain barrier, thus eliminating neurological side effects.
What dosage and when do you take Reglan??????. I am wondering how much Reglan is required to cause side effects?????
Regards
Dianne
Regards
Dianne
Can someone tell me how to access the yahoo support group for this condition? Also, I'm going to question our doctors about this drug reglan and see if there is something else that we can try. The more and more I look at it, I'm convinced that this will worsen the problem, not fix it.
I did not ingnore your request about the side effects,I have had,or still have from Reglan.I forgot my password,and had to ask for it,and they just responded..
Well anyway,I have been on Reglan for well over a year..It is the only medicine,that relieves some of my agony.
I have developed Restless Leg Syndrome,and muscle myopathy (sp?) My neurologist implies that if I continue to use this medicine,it will only get worse,and I would end up in a wheel chair.I went off of it,an within a few days,I was in so much pain,I went back on it..I know I am doing wrong by continuing with this medicine,butI am stuck between a rock and a hard place..I am hoping to try a new med,posted here in this thread.We will see,and I will keep you posted..
Well anyway,I have been on Reglan for well over a year..It is the only medicine,that relieves some of my agony.
I have developed Restless Leg Syndrome,and muscle myopathy (sp?) My neurologist implies that if I continue to use this medicine,it will only get worse,and I would end up in a wheel chair.I went off of it,an within a few days,I was in so much pain,I went back on it..I know I am doing wrong by continuing with this medicine,butI am stuck between a rock and a hard place..I am hoping to try a new med,posted here in this thread.We will see,and I will keep you posted..
Reglan can definitely cause very nasty side effects. To any and all that are dealing with this, I belong to an online support group for gastroparesis through Yahoo. That is where I learned everything I did about this lousy disease. They are a great support network and source of information and experience. There are people from all over the world, and every age group. There are moms of little ones, teens, and every age you can imagine. Some have other health issues, and the severity ranges from mild to very severe. I would recommend the group for anyone looking for more information and support. There are posts such as this, but it is obviously more directed. Great people. It amazes me the ignorance that doctors perpetuate, often to our disadvantage. As you can see by the number of responses just to this post, this is lurking out there, and a lot of people are suffering in silence.
Good luck to all.
Jo
Good luck to all.
Jo
Don't want to scare anybody who takes reglan, but I have heard nothing but terrible things about the drug. My mother who is a nurse and works in ICU, told me that reglan can have perment neuro effects...such as facial twitching and muscle spasams. It was prescribe to her once but she won't take it. I stongly suggest anyone who is taking it to request another medication, you have the right to protect yourself and your children. Don't let a doc tell you the side effects don't happen because they do, and they are scary. Research on your own if you need to.
I just started my domperdone two days ago so I can't really report on it but even though it's not FDA approved, I'd rather take that then reglan.
I just started my domperdone two days ago so I can't really report on it but even though it's not FDA approved, I'd rather take that then reglan.
I have a 2 year old who her doctors are now leaning towards a formal diagnosis. She has a g-tube in place now and who continues to have swallowing issues since birth. She was on reglan about a year ago but it didn't seem to help so has not used it in a year. They just re-started her on it this week in the hospital to get things rolling again and in reading your comments, I'm curious on the side affects, I was unaware that they could be permanent. She also had a head-bobbing/tremor to her body that occured at times and I'm wondering if this was a side effect of this medication that any of may have experienced. They are also now talking about giving her a central line to by-pass the stomache to send her home from the hospital. I just heard of this condition in the past few days right after she had surgery to correct her reflux and also open the plyorus. Reading over your comments, I'm wondering if this is something that could have been an underlying cause of her reflux in the first place. Did any of you have surgery for reflux and if so did it improve or worsen your symptoms? She also had a j-tube at one time but it kept falling out of placement and now I'm at my wits end on what to do. Now I'm just understanding why the poor kid didn't want to eat by mouth most days. She was on mostly a liguid diet and we just started to feed her some baby food to get her swallowing ability going. It worked on the swalling, however seemed to worsen her stomach woes. Any suggestions???
I am wondering what irreversible side effects you have from the Reglan? That is scary.
I took Reglan too. It made me dizzy, so I began to take it less frequently. I never thought it worked very well.
Last month my doctor gave me something new (on the U.S.market) to try. Zelnorm, 6mg. He said to take it up to 2x's day (30 mins before meals) if I'm having bad symptoms. 1x's day if I'm a little better & not at all if not symptomatic. It comes in 2mg or 6mg strength. WOW!!! What a difference!
I'm not really sure why this is working so well for me, or what in the heck is in it - but it has made a BIG difference in the way I feel. It's not like a laxative (in one end & out the other). It actually MOVES things along your digestive system, allowing for digestion. I can hear it churning & squishing & rumbling & rushing through. I never thought it could feel soo goood to pass gas. (Oh-no, I'm beginning to sound like my hubby! Eew!) I honestly will not take this pill unless I KNOW I won't be embarrassed by it's effects. You can hear the noise from my stomach in the next room!
When I took Reglan, I really didn't notice that my digestive system was working any faster. I did notice that I had the urge to go to the bathroom more. "The urge" - not that I was able to always go. Since Zelnorm, I am able to go more often. When I go, it is complete and provides relief.
Perhaps this will help for you too. Good luck & feel better!
It's me again. My doc put me straight on to domperdine(sp?) I live in the states and in my city it is only available at one pharmacy. The pharmacy makes it in house, but heck if I can order it from somewhere else that would be great, bet it's cheaper too. I just started it yesterday so I can't really say anything about the side effects yet. He also put me on nexium.
That bowtox injection sounds interesting. I have a follow up app. in january and I think it will be interesting to see what he says about how long I'll have to take the meds.
As for today, I think my thanksgiving meal will hold me over for 3 days :)
That bowtox injection sounds interesting. I have a follow up app. in january and I think it will be interesting to see what he says about how long I'll have to take the meds.
As for today, I think my thanksgiving meal will hold me over for 3 days :)
Hey, it's great to see such a response!! I always feel like the oddball. I order the domperidone from a place in New Zealand called Planet Pharmaceuticals, their toll free number is 1-877-271-6591. It is the original brand name of Motilium, and I recently ordered 1200 pills for just over $100, it is MUCH cheaper than in the US. And for the person in Australia, I noticed on the box it is made in Australia, so I assume it is available there. The dose varies anywhere from 10-40 mg., up to four times a day, 15-30 minutes before meals. I take 30 mg. four times a day. It has been a lifesaver. I have seen some of the top specialists in motility disorders, and this is "the" drug of choice. Few side effects, safe and effective. Any doctor that tries to tell you otherwise does not know what they are talking about.
I also take Zelnorm, but the manufacturer directions call for it to be taken an hour before meals, or 2-3 hours after a meal. Food interferes with it's absorption. It is made for constipation, but for some it stimulates the entire gut. Kind of like the kitchen sink, if you remove on part of the blockage, the rest is sure to work better.
As for the "healthy" meal of lean meat, salad and fruit, that's probably about the worst thing for people like us. It's healthy for a person with normal digestion, for us it spells disaster. sad but true. As for fresh bread, my doctor also told me to avoid "doughy" breads, which may explain why you do better with toast. i know I do, and that's probably why pizza is so bad for me, and bagels just sit like a rock in my gut.
Anyone in the US calling New Zealand, bear in mind the time difference. I usually call late afternoon, early evening. I have used them for awhile, and know many others that do too, and have never had a problem. In many parts of the world, it doesn't even require a prescription. You don't need a script to order it over the phone either. They also carry propulsid, for those who have taken that in the past.
I also take Zelnorm, but the manufacturer directions call for it to be taken an hour before meals, or 2-3 hours after a meal. Food interferes with it's absorption. It is made for constipation, but for some it stimulates the entire gut. Kind of like the kitchen sink, if you remove on part of the blockage, the rest is sure to work better.
As for the "healthy" meal of lean meat, salad and fruit, that's probably about the worst thing for people like us. It's healthy for a person with normal digestion, for us it spells disaster. sad but true. As for fresh bread, my doctor also told me to avoid "doughy" breads, which may explain why you do better with toast. i know I do, and that's probably why pizza is so bad for me, and bagels just sit like a rock in my gut.
Anyone in the US calling New Zealand, bear in mind the time difference. I usually call late afternoon, early evening. I have used them for awhile, and know many others that do too, and have never had a problem. In many parts of the world, it doesn't even require a prescription. You don't need a script to order it over the phone either. They also carry propulsid, for those who have taken that in the past.
Finaly I found someone who knows something about Gastroparis..I am miserable with this condition.I take reglan,and yes it has given me irriversable side effects.Without it though,the pain is unbearable.I have been searching for another type of medication for this ailment,and also support..Please tell me more..
Please Feel free to e-mail me..
***@****
Please Feel free to e-mail me..
***@****
You guy's answered my post regarding nausea, and the fibre thing is so true. I suffer constipation, or should I say, when I am feeling unwell, if only I could have a good BM, I would feel so much better, like my whole stomach is blocked up. I took Metamucil for a while, which did encourage regularity, but made me feel terrible and the nausea was cronic especially after a BM for some reason. Trying to loose a couple of pounds like we do sometimes, eating apples and drinking coffee for a snack made me feel shocking a couple of hours afterwards too.
Reglan is what I take for nausea which is called Maxolon in Australia, and does make me feel tired and a little light headed and would love to try Domperidone which I believe has little side effects. I am making an appointment to see my Doctor tomorrow and will find out if Domperidone is available in Australia. If it is in New Zealand our next door neighbours, I guess it would be in Aust.
Drinking too much fluid like in hot weather especially Diet Coke and Pepsi is not good for me either. Strangely with me, nothing really specific in the way of food will always set me off, but most of the time it is the "good" food that will.
My husband say's, how the hell can a peice of lean meat, a nice salad and fresh fruit make me feel ill, but it does terribly sometimes?????. Fresh bread appears to set me off sometimes, where toast, which I eat frequently is always fine.
My goal is to get an handle on this!!!!!!!.
Regards
Dianne.
Reglan is what I take for nausea which is called Maxolon in Australia, and does make me feel tired and a little light headed and would love to try Domperidone which I believe has little side effects. I am making an appointment to see my Doctor tomorrow and will find out if Domperidone is available in Australia. If it is in New Zealand our next door neighbours, I guess it would be in Aust.
Drinking too much fluid like in hot weather especially Diet Coke and Pepsi is not good for me either. Strangely with me, nothing really specific in the way of food will always set me off, but most of the time it is the "good" food that will.
My husband say's, how the hell can a peice of lean meat, a nice salad and fresh fruit make me feel ill, but it does terribly sometimes?????. Fresh bread appears to set me off sometimes, where toast, which I eat frequently is always fine.
My goal is to get an handle on this!!!!!!!.
Regards
Dianne.
This is certainly something I know about! I have it myself. What is the medication they gave you? If it is reglan, be very careful, because it can often have some nasty side effects. I take a medication called domperidone, I order it from New Zealand, because it is not sold here. It is a wonderful drug, has been on the market a long while, and is safe and legal to obtain from another country.
There is no surgery per se to get rid of this condition. Some people who have a severe form end up with feeding tubes to obtain nutrition, most manage without them. There is something called a gastic pacemaker, it stimulates the muscles in the stomach to contract, just like the cardiac pacemaker. Most people end up with a combination of medications to help control the symptoms; a proton pump inhibitor, since many end up with too much acid in the stomach from delayed emtpying, a pro-kinetic, something to stimulate the stomach, and often something for constipation if the whole digestive system is slow, very common. Also, if you have a lot of nausea, a nausea med such as zofran, which is non sedating.
When I got my diagnosis, I started searching the web, and found a wonderful online support group through yahoo, for gastroparesis, (the technical name). I got a lot of information and support. It is a weird and crappy disease to have. The sooner you get a handle on it, the better. I would also find a specialist that handles stomach motility disorders.
Also of importance, following the dietary guidelines, which essentially restrict the intake of foods that the stomach has trouble breaking down, such as fibers, especially raw fruits and veggies, anything with skin or seeds, whole grains, beans, and red meat. Also anything high in fat, as that delays stomach emptying.
There is another procedure, a botox injection into the pylorus of the stomach. It paralyzes the stomach into a more open position, thus allowing food to pass through more readily. That is done by endoscopic procedure. As you can see, there is a lot of information, and many different types of treatment, that can help a lot. Seach the web, especially the yahoo groups site, they guided me through everything. Let me know if you have any questions.
There is no surgery per se to get rid of this condition. Some people who have a severe form end up with feeding tubes to obtain nutrition, most manage without them. There is something called a gastic pacemaker, it stimulates the muscles in the stomach to contract, just like the cardiac pacemaker. Most people end up with a combination of medications to help control the symptoms; a proton pump inhibitor, since many end up with too much acid in the stomach from delayed emtpying, a pro-kinetic, something to stimulate the stomach, and often something for constipation if the whole digestive system is slow, very common. Also, if you have a lot of nausea, a nausea med such as zofran, which is non sedating.
When I got my diagnosis, I started searching the web, and found a wonderful online support group through yahoo, for gastroparesis, (the technical name). I got a lot of information and support. It is a weird and crappy disease to have. The sooner you get a handle on it, the better. I would also find a specialist that handles stomach motility disorders.
Also of importance, following the dietary guidelines, which essentially restrict the intake of foods that the stomach has trouble breaking down, such as fibers, especially raw fruits and veggies, anything with skin or seeds, whole grains, beans, and red meat. Also anything high in fat, as that delays stomach emptying.
There is another procedure, a botox injection into the pylorus of the stomach. It paralyzes the stomach into a more open position, thus allowing food to pass through more readily. That is done by endoscopic procedure. As you can see, there is a lot of information, and many different types of treatment, that can help a lot. Seach the web, especially the yahoo groups site, they guided me through everything. Let me know if you have any questions.
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