I am 31 and last year had an emergency colectomy with the ileal pouch reconstruction.
(no external pouch) I had very few intestinal problems in the past and
only showed signs of the ulcerative colitis 3 months prior to my surgery.
Now I am feeling pretty good, but I have been experiencing a lot of discomfort
where the internal pouch was created-in my rectum area. Two months ago I had a flexable sig and
my GI doctor said that I did not have any signs of pouchitis. Currently I am taking
simethicone because I am assuming much of my problem is gas, but I am nervous
about having to rely on this for my whole life. I wonder if there are any
more 'natural' ways to help with the gas and other ways to deal with the
discomfort of the internal pouch. (By the way, I cannot expel gas in a 'normal' way, my stool
is still too soft) Any suggestions? I am also looking for a support group for this
type of surgery. Thanks for any suggestions.
Using simethicone should not cause you anxiety. It is a safe medication. If you want you can try charcoal products. The charcoal, which remains in the gut, adsorbs the gas eliminating the problem. I would not suggest that you change if the simethicone is working for you.
To find a support group, I suggest that you call your surgeon or local colitis society office. The Crohn's and Colitis Foundation of America has a web site (cda.org) that provides patient information as well as a listing of local chapters.
This information is provided for educational purposes only. Always consult your personal physician for specific medical questions.
*keywords: colitis, ileo-anal pouch
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