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I call it UP-Syndrome

by blownaway, Aug 25, 2008 07:19PM
Rarely is he down.
He is a ray of hope love and life. A breath of fresh air.
He gives SOOOOO much to SOOO many.

I say SHAME on ALL of the adults DOWNING the d kids.

My son likes to do some things just to watch others FREAK OUT.

Perhaps the people doing the complaining need to consider that the kids MAY be OVERwhelmed with life as a target
Member Comments (8)

by fung, Aug 25, 2008 09:16PM
It's good to hear your saying ,we're in the same boat. Mine is 8 and  I noticed that he has HUGE  sense of humor in him, and he is so funny too. ..  My daughter thinks so too.  We laugh a lot with him in everything we did together. It's good to have him with us.

by SimplyStar, Aug 25, 2008 10:43PM
To: Blownaway
I have always treated my son as a normal child, he had to compete with 3 older brothers and a sister.  The entire family pitched in to help him learn and now at 38  he is an independant adult. He has all the normal feelings of any adult,  laughs, cries { not too often } angry, bored,  frustrated, curious, entergetic, tired, hungry and anything that others feel so can he. It is mainly the communication level that has to be perfected to derive any happiness for a DS child, once learned, they do not forget.  I not only have my son, but have worked in this area until my retirement, sheltered they do not grow, left to be independant they do.  I can tell you that most mothers are now accepting their babies with DS,  we older Mothers got the word out about that they were more alike than different than other babies.

by blownaway, Aug 27, 2008 08:34PM
To: thanx for commenting
doesn't seem that there is much interaction that goes on on this sight.

by SimplyStar, Aug 27, 2008 11:05PM
I got Med Help to start this  months ago, it is here for those that need it,  I try to check it out  daily, but my daughter has Ovarian cancer , so I am mainly on that site .   it goes in spurts and sometimes nothing at all for weeks.  glad to have you aboard.  marty

by Clamity2, Oct 02, 2008 10:52PM
Up Syndrome I thought I thought of that first !~!    Hey as long as we are braging.....  My son is the ultimate Prayer Warrior !!!!   You don't have to ask for prayer. If you even look like you have a headache he will lay hands on you and pray!!!    Oh I just love him sooo much.

by cassangel, Oct 25, 2008 06:05PM
To: blownaway
Thank you for your positive post :)  I have a 9 day old baby boy with DS and am scared and overwhelmed, just do not know what to expect. I love hearing the positive and the hope. Maybe, just maybe things will be all right.... it is not the end of the world...... :)

Thank you!


Cass

by blownaway, Nov 03, 2008 05:29PM
To: cassangel
So nice to hear from you.
My name is Ronda and we live in Colorado.
It will be much better than alright. He Will be your angel here on earth for he was born with his cross, he is a true angel and quite close to Jesus.
He will fill your heart and teach great patience.
His inosence will be his to keep because he will never lose it.
As God came to him in your womb and asked "Will you suffer for me your Lord Jesus Christ", your angel said "Yes"
Your hearts will be full.

your family is beautiful.

by ezra16, Feb 23, 2009 05:55PM
To: cassangel
Hi there

Im 35yrs old and i had my first baby boy being Down Syndrome when i was 19. It was scary at first but am so greatful for the gift i was given. With feeding i definitely wanted him to have the breast milk, and of course with their low muscle tone of there tongues i discovered a nipple shield that was kind of like a teat but was easier for him to drink straight from the breast. Now my son Ezra is turning 17 yrs old and how time has flew.

Also what helped me through was a book called "Supernatural Childbirth" By Jackie Mize.

Good luck with your dear little one
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