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Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...
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Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...

Hello. I'm seeking any type of advice. Our 8 mos old daughter diagnosed with Trisomy 21 underwent corrective surgery for a VSD and PDA, she also has hypo throid and recently diagnosed with Pulmonary Hypertension. Any one going through a similar situation? Are we alone? She is undergoing Nitric Oxide treatment and Sildenfil for 2 wks already now her fontenelle keeps rising.. doctors are unsure of the causes.
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I have heard of all of these  but I do not know enough to give you any advice,  the only thing I would ask is , are you satisfied with her doctor?  If not get a second opinion.
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