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Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...
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This forum is for questions and support regarding Down Syndrome issues such as Dental Problems, Communication Problems, Developmental Disabilities, Hearing Loss, Hypothyroidism, Immune System Problems, Learning Disabilities, Joint Problems, Muscle Weakness, Respiratory Disorders, Seizures, Sleep Apnea, Weight Problems.

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Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...

Hello. I'm seeking any type of advice. Our 8 mos old daughter diagnosed with Trisomy 21 underwent corrective surgery for a VSD and PDA, she also has hypo throid and recently diagnosed with Pulmonary Hypertension. Any one going through a similar situation? Are we alone? She is undergoing Nitric Oxide treatment and Sildenfil for 2 wks already now her fontenelle keeps rising.. doctors are unsure of the causes.
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I have heard of all of these  but I do not know enough to give you any advice,  the only thing I would ask is , are you satisfied with her doctor?  If not get a second opinion.
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