Aa
A
A
Close
Avatar universal
Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...
Hello. I'm seeking any type of advice. Our 8 mos old daughter diagnosed with Trisomy 21 underwent corrective surgery for a VSD and PDA, she also has hypo throid and recently diagnosed with Pulmonary Hypertension. Any one going through a similar situation? Are we alone? She is undergoing Nitric Oxide treatment and Sildenfil for 2 wks already now her fontenelle keeps rising.. doctors are unsure of the causes.
Cancel
1 Answers
Page 1 of 1
167426 tn?1254089835
I have heard of all of these  but I do not know enough to give you any advice,  the only thing I would ask is , are you satisfied with her doctor?  If not get a second opinion.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Down Syndrome Community Resources