Down Syndrome Community
Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...
About This Community:

This forum is for questions and support regarding Down Syndrome issues such as Dental Problems, Communication Problems, Developmental Disabilities, Hearing Loss, Hypothyroidism, Immune System Problems, Learning Disabilities, Joint Problems, Muscle Weakness, Respiratory Disorders, Seizures, Sleep Apnea, Weight Problems.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Pulmonary Hypertension, w/ Trisomy 21 & Heart Repair ...

Hello. I'm seeking any type of advice. Our 8 mos old daughter diagnosed with Trisomy 21 underwent corrective surgery for a VSD and PDA, she also has hypo throid and recently diagnosed with Pulmonary Hypertension. Any one going through a similar situation? Are we alone? She is undergoing Nitric Oxide treatment and Sildenfil for 2 wks already now her fontenelle keeps rising.. doctors are unsure of the causes.
167426_tn?1254089835
I have heard of all of these  but I do not know enough to give you any advice,  the only thing I would ask is , are you satisfied with her doctor?  If not get a second opinion.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Down Syndrome Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank