DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
12 year old daughter

12 year old daughter

Our 12 year old daughter has been diagnosed with CFIDS - she has all the symtoms (symptoms) of POTS - at this point we do not know if that is instead of or part of CFIDS - we are of course hoping it is instead of...we see a cariologist tomorrow in Austin but I do not think we will get the treatment we need here.  I have found a doctor at the Houatons children hospital that treats kids with POTS - Dr Imad Jarjour - but I can not find much information on him.  We are trmeopted to go to Ohio to Dr Grubb or VA for another well know dr - whose name I can not find right now - any opinions or experience with the Houston Dr - or experience on traveling for treatment - seems like a better bet to me- but we have already traveled quite a bit this year  - and my daughter is so wron out I want to make a good decision. Any insight is appreciated.
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