20,000 pvcs daily, ? meds

[STYLM2]

I have inappropriate sinus tachycardia and uni- focal pvcs. I am a  35 year old female.
The tach is induced by simply standing up or putting on my clothes. The pvcs occur at nearly 20,000 a day, I am incredibly symptomatic and I feel every one. I have been on atenolol, it helped the tach but not the pvcs. I am currently taking nothing to treat my issues.
I have been told I have PCOS and possibly POTS.
I do notice some (very) short term alleviation of symptoms with magnesium, B12, even sodium.

My doctor thinks the pvcs originate from the right outflow tract near the pulmonary branch and suggested I take either verapamil or metoprolol (the doctor says it is hit or miss and told me to take what I want.)
I am terrified to take anything that could make things worse as I can barely handle my symptoms now.
Verapamil can apparently cause asystole, heart block, proarrhythmias. I am also concerned because sitting down induces pvcs so an even slower heart rate as a result of medication could be an issue.
According to echo and monitoring I have a healthy heart but I am terrified to act on this with meds at this point. I was prescribed pindolol and ended up in the emergency room with a fast  heart rate coupled with bigeminy.
Any advice would be appreciated.

[invisiblyme]

Spoke to our doctor about the POTS/PCOS and he said that he sees alot of patients with both.He totally believes they correlate.  What did your doctor say.

[STYLM2]

I do think the conditions are related. I feel as though the cardiac issues definitely flare up during hormonal shifts. Unfortunately I have not found a doctor who wants to explore any correlation. I will be seeing a new specialist this week..I am going to discuss the possible link with her and will certainly post her thoughts on it.

[stillhere340]

I would recommend an evaluation by an endocrinologist for the  PCOS to make sure there is no other hormonal issue aggravating the symptoms.  Since you obiously are frightened by the medications, either sit down with the doctor and explain to him your concerns and if he doesn't address them then find someone who will.  I am in a similar boat.  I have significant amount of PVCs and symptomatic and even tried the ablation  but to no avail the dr. was not able to get all the sites.  I am not able to take the meds to control the PVCs because I am an asthmatic and/or I don't tolerate them.  Next step ???  good luck and make him/her answer and put your fears to rest.  the last thing you need is to be afraid of the treatment

[invisiblyme]

Just wondering if your doctor thinks your POTS and PCOS are related.  My daughter was diagnosed with POTS about 2 years ago(I also have POTS) and was recently told she has bilateral PCOS.  Her POTS has revealed mitral valve prolapse and hypothyroidism(Hashimoto)....so I can't help but think that PCOS is not just by chance.  Any thoughts?

[STYLM2]

Thanks so much..I will give the diet approach a try.

[STYLM2]

Thank you for the advice..I really appreciate it.

[anacyde]

I'm not suggesting what you should do here, but if it were me, I'd try the metoprolol.  That's a pretty benign beta blocker and is typically well-tolerated.  Also, if you have PCOS, I would experiment with diet a little bit and see if that helps.  This is totally crunchy mama, natural remedy stuff here, but I noticed that eliminating soy drastically reduced my palpitations.  Dairy can play havoc with hormones for some people, too, as can a lot of meats.  You could play around with different dietary options and see if that brings any relief.  It's a drug-free approach.  I hope you find some relief soon.

[Midijane]

Hi STYLM2, my experience with verapamil (a calcium channel blocker), is that is pretty benign regarding symptoms. Metoprolol can be a little aggravating in the beginning until you get used to it. I'm told it can give you a washed out feeling at first and general fatigue. They both can cause lower heart rates because they are made for that purpose.

I'm sorry you feel so bad right now and hope you can find the right treatment asap. Take good care. Midijane