This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
Let us know how well they hold up after about a week. Mines always seem to fall... (They stayed put for about three days before they started falling every couple of hours. Quite an annoyance.) Was the custom sizing covered by insurance, or Medicaid at all?
Perhaps one of our members will have some thoughts to offer on avoiding the rug burn. That certainly doesn't sound pleasant! I've not had that problem myself, but perhaps that is because I'm using a lower compression.
I don't mind being freakishly proportioned; I had my rollator walker custom-fitted to my proportions as well. :-p
I would say for anyone wanting to get custom covered by insurance, have the shop do the bazillion measurements they would do to fit you for custom, and compare those to the measurements for standard stockings to see if your proportions are significantly off. That's probably what justifies insurance paying for custom. They also do each leg separately and label which stocking is for which leg, which strange as it may sound, you know most of us aren't perfectly symmetrical so it could work to your advantage if one of your legs has slightly different measurements than the other or something like that too.
Oh, about the brush burn--it's better if we turn them inside out as we remove them and pull them off that way. But does that make them loosen up faster? Do you guys know from experience? Is it better for the longevity of the stockings to try to push them off right side out instead of sort of peeling them off like a banana peel inside out from the top down? (No clue if I'm explaining that well, but can't think how else to say it.)
I got terrible rug burn all up and down my legs when I went to the higher compression, but it went away after about two weeks. I assumed it was because I have really soft skin from EDS, but maybe everyone gets it. I also learned that putting them on immediately after shaving you legs can be painful!