I am 23y/o female. I went through a cath ablation 5/8 for what was thought to be SVT.
However, once in, the EP couldn't locate any SVT. I went into Atrial Flutter twice which went into Atrial Fibrilation that required electric aversion. The Aflutter was ablated...However, following the procedure, I suffered a TIA.
Both Preablation and postablation, I have been extremely symptomatic including: I also go into bouts of complete weakness, extreme sinus tach (~163bpm) sitting or standing, palpitations, migraines, extreme fatigue, horrible night sweats. TEE showed large PFO or small ASD.
Problems:
1. First cardiologist said I need 2 neurological events before he will close it.
2. Because the first ablation didn't help any symptoms or the sinus tach, one ElectroPhys wants to do a sinus node modification and the other says no, and that I have to either "deal with it" or stay on bloodthinners and beta blockers (which, I cannot because I have hypotension)
3. Neuro Doc says I have dysautonomia and that I need to take part in autonomic research studies if "I wish to have more answers"
4. Second cardiologist says "something is really wrong with you, but I can't help you"
5. My insurance won't allow me to see anyone other than 3rd rated cardiologists and doctors alike.
6. My short-term disability is running out, and I have no more answers than I did 7 months ago. I don't have family within 8 states and finally the understanding of my employer is failing.
Who do I trust? Where do I go from here? If my insurance won't allow me to see a decent doctor...is there anyone that could/would help me? Can an ASD/PFO be causing many of my symptoms? Should I allow the SA modification? Can they do both the ASD/PFO closure and the SA modification at the same time? In the long run, can ASD/PFO really put me at risk for developing pulmonary hypertension? or weaken my heart?