Dysautonomia (Autonomic Dysfunction) Community
Adrenaline
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Adrenaline

I am wondering if anyone knows about testing adrenaline levels in POTS/dysautonomia.  My insomnia is so bad and I have tried many meds. I am so fatigued then hyper at other times and I saw something about testing adrenaline levels. I was at Cleveland Clinic a year and a half ago and I don't know if they did this or not.

Has anyone been tested for adrenaline issues and what was recommended?  

Laura
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I have POTS and I just had my adrenals checked by an Endo dr.  You would know if they tested them because it's first thing in the morning and they inject you with something and then you have to have a blood test every 30 min for an hour or more.  My levels were normal but now she wants to do a 24hr test where I have to take a pill and they test me for 24 hrs.  It's called an ACTH stim test and it checks your cortisol and ACTH.  I think these are hormones produced by the adrenal glands and hypothalamus.  You should have this checked because some people with dysautonomia have adrenal problems.  Hope this helps.
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I agree with Meagan...I personally have a genetic form of adrenal insufficiency which is when my Dysautonomia started (age 11)...but it got far worse after mono (age 28)...get checked.

Shari
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There are blood tests that can test your norepinephrin and dopamine and other levels to check if you are high or normal but it has too be done the right way its the way they test you for a pheochromocytoma. And there are certain medications that interfere with the levels, so you have to make sure the lab knows what they are doing
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I just had my adrenaline levels checked while at the Mayo clinic in Phoenix.  They had me lie in a quiet room for 30 minutes and drew blood from a port in my arm....Then I had to stand for 10 minutes and they drew another sample.  buddysmom1 is absolutely right in that samples must be handled properly.  I think the life of norepinephrine once exposed to room air is only two minutes.  My norepinephrine was quite high.  I will have a clonidine test to rule out a pheochromocytoma soon.  One of the other causes of very high norepinephrine can be severe sleep apnea which I also was diagnosed with during that visit.  I am on CPAP now and in a month we can see if that has made any difference with these particular symptoms.  One of theseis very labile BP which is low and high and surges quite high suddenly especially when in new situations.  I also have facial flushing.  Marie
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