My son's temperature dropped to 93 degrees yesterday! He was so nauseas he couldn't turn his head without throwing up. To touch him, he was very cool, yet he was complaining of being too hot. This just didn't make any sense. He was admitted into the hospital last night to bring up his temperature and to try to get his nausea and dizziness under control. He was released at noon today, still nauseated but his termperature was back up.
Anyone else have this experience, of their temperature dropping like that? Plus the doctors/nurses couldn't figure out why he would complain of being hot, when he was actually cold? Bad body thermostat?
Christy, sorry your sons having such a tough time. When my body temp drops I have terrible hot flashes. I also have a tendency to feel terrible hot sometimea in the cold even though I am fairly cold blooded abdomen usually shivering. My neurologist says its because my body thermostat is broken. Not much help but your sons not alone with this crazy temp thing. Hope he feels better.
I am so glad he is better now. That had to have been scary for all of you. Many of us have our temps run sub normal I think. Mine does it too and partly because of low thyroid. It often is in the 95.6-97.6 range. If it gets much below that you are approaching hypothermia and I feel chilled. I also feel like 98.6 is a fever for me. I have read in the autonomic literature some where that many people with dysautonomia have low temperatures and running one at above normal has more impact.
I have been told that if you feel cold with a fever that means the temperature is still trying to rise. Could the opposite be true and if a temp is trying to lower further you feel hot?
I found this explanation of why people shed their clothes even in snow when they suffer hypothermia. Perhaps the same mechanism is at play here.
At the hospital, did they do or suggest an MRI scan be done of your son's hypothalamus gland, as it is supposed to be what regulates temperature, to see if there was any abnormality there they could detect?
They did not suggest that. They asked if his Cleveland doctors have done any MRI's, and we said yes,--of the brain with and without contrast, but they didn't say anything else. They just didn't really know how to deal with this because they aren't educated on the dysautonomia.
I am going to email his doctors in Cleveland tomorrow and update them on the episode and I will definitely run that by them.
Thanks everyone for your responses. As much as I don't want other people to have to deal with this, it is good to know we are not alone.
Just popping in really quickly with a few links that might be of interest. Sorry I can't sit here long enough to post more in depth. :-( See my "update" post for explanation. PM me if you have more questions and I could try answering from my cell phone, though for some reason I haven't been getting my email alerts for my PMs like I'm supposed to, and I apologize in advance that my typing from my cell phone can be kind of sloppy.
Chapter from one of the best autonomic textbooks: (Click the link with the page # that pops up from this search to open the chapter to read it)
This genetic (not familial dysautonomia, something else) form of dysautonomia mentions hypothermia, but I would think the docs in Cleveland would have likely already ruled that out by catecholamine testing ... putting the link here just in case anyway:
My body temperature has been a few degrees below normal since I was a teenager... I hit 94 degrees the first time at 14. I generally feel very cold with it, but sometimes when it drops very low I feel very overheated. I've had tons of doctors/nurses think their thermometers are broken until I explain I have dysautonmia. My family doctor knows if I am even at 99 degrees I am REALLY sick, since I am NEVER higher than 96 degrees otherwise. it's really tough to explain to walk-in doctors that my case is serious at 99 degrees though since they want to compare to a "norm" fever! :P I am used to it now, having lived with it for 22 years... I'm sorry about your son... I know it doesn't help much, but know that he can learn to live with it. My doctors feel it is something I can live a long and healthy life with, we just need to take precautions like extra layers in winter and monitoring...He will have to let docs know about it too. I hope all goes well with your son.
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