I had a positive tilt table test. I faint for no reason. Before going to a Neuro, I'd been to several Drs. I was passing out 5-10 times a day. I had 2 seizures a month apart that got the Dr looking at the POTS as my diagnosis, I did the tilt table test, showed positive and now I take a medication called Metoprolol,it's a beta blocker. I've fainted some, not much at all for awhile before we moved here . Once we moved I've only passed out 2 times in 8 months.
I hope this info is valuable to you. You all with POTS are not alone. I hope your family continues to find good care so they can live life to it's fullest.
How hard it must be to have such a young child suffering with this. I don't have answers but do know there are people on here that have children with this so will bump it up for u so maybe they will see it.