Has this happened to anyone else?? Tonight my left hand went numb. not the whole hand... Just on the side of my hand including my whole pinky finger. I could feel the rest of my fingers. A few days ago I started getting burning sensation on the left side of my face and left hip. It will go away but comes back several times a day. It can be quite uncomfortable. I have had alot of weird symptoms from POTS...but never anything like this.
Your message is already a couple months old so I'm not sure if you're still experiencing the numbness... but thought I'd reply because I have this problem too.
I haven't been diagnosed with POTS (haven't done any testing for it) but I have dysfunction of my autonomic nervous system and peripheral neuropathy. It started about a year ago with a patch of tingling in my back that would come and go. I slowly developed other symptoms like palpitations and silent migraines, dizziness, etc. One day last fall I had a big episode (with no apparent trigger) where my whole right thumb went numb, then my hand, then I got tingling up my arm. It spread to both legs, my lower lip, and tongue. It was a prickling/tingling/cold sensation, but I could use my limbs normally. It resolved in about 2-3 hours, but I've had some neuropathic symptoms every day since then. My feet and legs are most often affected, but it happens in other spots too (cheekbone, scalp, fingers). The sensations can be burning, tingling, cold, pain, or even feelings like I have drops of water on my skin.
The first thing I'd suggest is to make sure you don't have any vitamin deficiencies (iron and B12 especially). Also get your thyroid function and blood sugar checked. And ask for an ANA blood test to identify autoimmune disease. If that doesn't yield anything, you could consider seeing a neurologist. He/she can try to diagnose the variety of neuropathy you have through various means (nerve conduction study, MRI, skin biopsy).
My neuropathy isn't classified yet, but it's obviously related to my other peripheral nervous system issues. I have a positive ANA (for autoimmune disease) so it may all be caused by inflammation of nerves and blood vessels related to that. Unfortunately no one can figure out which autoimmune disease I have. I've heard a lot of "well, there's definitely SOMETHING going on." Frustrating!
I have had a trip to the ER today.. My left foot went numb 3 days ago and is still numb. Today half of my face went numb and still is 12hrs later... So confusing and frustrating. While in the er I was told there are many reasons for numbness. Go home...follow up with my family Dr. They did no blood work. I do know from tests last year that my thyroid function was good, my blood sugar was ok. My iron levels were ok. I have never had my b12 checked.
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