Aa
Aa
A
A
A
Close
612876 tn?1355514495

Checking in

Hey gang, wanted to check in as I know it's probably been a while since I've updated you all on what's up with me. My dysmotility/gastroparesis took a sudden turn for the worse and I also got a gastric ulcer from my meds sitting in my stomach irritating it, SO I considered my surgical options and decided to forgo the gastric pacer and get a G/J (type of feeding tube that goes through the abdominal wall and into the stomach for decompression, into the middle section of the small intestine for feeds and meds). Well, my planned two day hospital stay got SUPER extended (over two weeks) due to complications and problems tolerating the formula. I'm finally on an elemental formula that's working well for me, and scheduled to go in Tuesday to revise the surgery. (Due to the complications they ran into, they weren't able to complete the original surgery as planned-Whee!) Other stuff: in the process of being worked up by genetics for mito, other metabolic disorder, EDS, and/or a novel mutation that's my very own (LOL!) via muscle biopsy and blood tests. Learning all sorts of fancy new jargon like ”exome.” Ruled out CDG and MNGIE. Plethysmography showed venous valvular insufficiency in left leg but not right, so need to get back up to vascular department at CCF to see what that could possibly mean. Very strange ... But then, I lost sight of normal a long time ago, right?  :-P  I hope everyone had a great Passover, is having a happy Easter, and/or is enjoying the start of spring! Gentle hugs,

Heiferly.
4 Responses
Sort by: Helpful Oldest Newest
986162 tn?1297438441
I'm sorry you've had such a rough time. I pray that everything goes well with your surgery. For those of us with chonic illnesses we have to endure so much, all I can say is try to stay strong, I think we are very strong people to go through what we do.
Helpful - 0
875426 tn?1325528416
May God grant you a speedy recovery post surgery tomorrow, Heiferly!

Mtgardner- you are funny with the Scrabble comment! :0)
Helpful - 0
1323747 tn?1364806882
Hope you surgery goes well this next week.  "Exome" indeed!  Had to look that one up.  Remind me not to play Scrabble with you as I think you know too many new words!

Helpful - 0
Avatar universal
Wonderful to hear from you!  It's been a long time! On the other hand sorry to hear that you have been through so much not great stuff. Hope it all starts getting better soon for you.

Hope in spite of it all you had a good Easter.
Helpful - 0
Have an Answer?

You are reading content posted in the Autonomic Dysfunction Community

Top Arrhythmias Answerers
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Are there grounds to recommend coffee consumption? Recent studies perk interest.
Salt in food can hurt your heart.
Get answers to your top questions about this common — but scary — symptom
How to know when chest pain may be a sign of something else
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.