I was evaluated by Dr. Jaeger at Cleveland Clinic in Fall 2009 and have not been back for a follow up visit. I live 8 hours away and cannot drive that far, so would have to fly and stay in hotel. Has anyone been able to do followup by phone with CC and is it worthwhile?? I am not even sure what med changes I could do anyway.... I am on midodrine and fludrocortisone. I would not increase my fludrocortisone b/c I now have osteopenia (sp) and I cannot take many other POTS meds b/c of my asthma.....
My local cardiologist has a few POTS patients but has acknowledged or rather "complained" to me repeatedly that it is a "very frustrating" illness for him to treat. If he thinks POTS is frustrating to treat, he ought to try living with it! So it is hard for me to get enthused about seeing him UGH.
On a very positive note, I can now exercise for the first time in ten years! Dr. Jaeger at CC strongly encouraged me to exercise to build up leg muscles in particular. I was very afraid to b/c of many past failed attempts. I started two minutes on an exercise bike going so slowly that the bike did not even register that there was anyone on it. I increased my speed and time VERY slowly over several months. I am now up to 30-35 minutes on the treadmill and can even use some leg weight machines! On my worst days, I do not exercise. It is working out pretty well so far, except for during the very hot days this summer.
Thanks. I met with a trainer and have added some upper body exercises. Also read that in addition to legs, it is good to increase abdominal muscle strength to help with blood flow. I am being VERY cautious about beginning these new exercises gradually and really hope I can do this. No arms above head though, I have learned about that the hard way.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.