Correlation between Demyelization and POTS

My daughter just had a differential nerve block for recurrent abdominal pain, she also has POTS. She has not recovered motor function and has limited feeling in her lower extremities. Previously she had a MRI with contrast that showed a demyelization and now I am being told there could be a correlation and could possibly be the reason for the complications. Any thoughts on this?
Thank you!

[AireScottie]

Have the doctors come up with a cause of the demyelinization?  It seems like that would be most important.  Certainly nerve damage can cause POTS, because the heart rate and BP are regulated by the autonomic nervous system, and if these nerves are damaged and gone, they won't function.  I have neuropathy of a different kind, so I'm not an expert on the problems of demyelinization, but it sounds like a reasonable cause.  There's someone else on the forum with MS who has really severe dysautonomia.  If her POTS is from nerve demyelinization, then the only way to control the POTS is to treat whatever is stripping the nerves.  Hope this is helpful; sorry I don't know enough to give better answers!

[Heiferly]

Thanks for answering this, I was going to ask that either you or the other member that you mentioned respond since you two are our resident nerve experts.  :-)  You read my mind.  Thanks!

[tonyad]

Just to get a clearer picture of what you are saying...............Was the MRI done on her brain??? Or spine??  The reason I am asking this is because that is where one would see demylination either brain or spinal cord. There is certailnly a correlation between POTS (Autonomic Dysfunction) and MS.
   Please note, I am in no way saying that is what is going on with your daughter.
And the actual Nerve is not stripped. It is the covering (myelin sheath) that is affected.

Autoimmune disorders are diseases in which the body's immune system misinterprets a normal structure or function of a person's body as an alien object and begins to attack it, causing the disease. Other autoimmune disorders include rheumatoid arthritis and lupus.
In multiple sclerosis, the immune system attacks the fatty tissue that surrounds the neurons in the brain and spinal cord. This tissue, called myelin, protects each neuron and allows each neuron to conduct its signals correctly through the brain or spinal cord. When the myelin is damaged, scar tissue, called scleroses, plaques or lesions, are formed. The lesions interfere with the neurons ability to conduct signals, impairing the brain's ability to send signals to the body and impairing the body's ability to function.

  Has she had an LP done yet?  Was it just ONE lesion (demylination) seen?
And what part of the brain (or spine) was it seen in?

talk to you soon,
~Tonya