Damaged Vagus Nerve in 17 year old

[Tigges]

Our son had an ablation done a year and a half ago and the Vagus Nerve was damaged in the process.   He was a strong healthy boy, now, too weak and sick to stay in school.  Suffers from irregular and rapid heart beats, sharp jabs and tightness in chest, blacks out, diahrea and nausea off and on.   We need to find someone who can help figure out what to do.

[rbird]

We are going to see Dr. Fischer in the pedi diagnostic category.  She has been diagnosed with POTS which is a developmental form of autonomic dysfunction. Her symptoms came on gradually over a few years.  No one has ever said that her ablation could be the cause of her trouble.  (However I can't help but wonder).  She has a lot of the same symptoms as your son.  
We have done extra salt, extra fluid, Florinef, Toprol, Cymbalta, Adderall, Xanax (My daughter also has depression and anxiety issues.)  I've seen a little improvement, but not much.  For POTS there are other meds that we can try.  
I don't know where you've looked for answers, but in the realm of autonomic dysfunction - several names always pop up--Dr. Blair Grubb (I think he is in Cleveland), Dr. Julian Stewart(New York),  & Dr. Fischer at Mayo.  Another good resource is DYNA at dynakids.org. They may be able to help also.  
Her condition is the hardest thing that I have ever had to deal with in my life.  I would advise you to be sure and look after yourself, too.  (I know that's hard to do.)  Be sure you're eating, sleeping, getting out with friends, exercising.  If it's all too much, you may need some antidepressants.  They have helped me.  
I wish you the best of luck .  rbird

[Tigges]

Mayo drs. recommend Beta Blockers and diet alterations.  Neither has been successful.

Mayo performed the Sham Feeding Test, and that was what made them see that the Vagus Nerve was Disfunctional.  Now a Neuralogist we found in Chicago who works with kids who are born with these issues, has prescribed 10mg of Valium, three times a day to keep his Nervous System from becoming "Frazzled". Which is not working either.
We are trying to find someone who knows what to do with a young adult, age 17, with ACQUIRED Dysfunctional Nervous system. (if that is what it is)
Is your daughter suffering from these same symptoms?
What type of Dr. are you going to see at MayO?

[rbird]

hers was done at Texas Children's Hospital in Houston.  They have an excellent pedi cardiology department.  Her problems have been gradually developing so her dysautonomia is probably not due to the ablation, but as a mom, I keep trying to figure out why.  Also her ablation was done with radio frequency.  I don't think there was any radiation involved.  
Coincidentally, we were at Mayo in July and are going back this month.  They never mentioned ablation as a possible cause of her problem.
What did the doctors at Mayo recommend?  
If it's any comfort, I have an idea of what you are going through
rbird

[Tigges]

Where was your daughters ablation done?

[Tigges]

After two weeks of testing at the Mayo Clinic we were told that it was suspect that the radiation from the ablation caused the damage.

[rbird]

Question:  How do you know his vagus nerve was damaged?  What does your cardiologist say about it?  I am curious because I suspect that my daughter's dysautonomia symptoms may have started after her ablation a few years ago.  I'm sorry that I can't answer your question, but if you give me some info, I might be able to help steer you in the right direction.  Sorry all this is happening to you.  
rbird