Dysautonomia (Autonomic Dysfunction) Community
Doctor for POTS in Colorado or Utah
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Doctor for POTS in Colorado or Utah

I have been diagnosed with POTS in August 2009.  I was diagnosed at Mayo, but is hard to travel there and no meds were given to me.  I am currently on Zoloft 75 mg everyday.  It did seem to help for a little while, but I am falling backwards again.  My primary doc is reluctant to prescribe any meds.  So I am looking for a specialist in Colorado or Utah?  My main symptoms are anxiety, tachy, fatigue(especially in am), frequent urination, sometimes dizzy when sitting.  I have increased my salt intake, and raised my bed three inches.  I would appreciate any help or advice.  I wish everyone well.
Amy
Tags: POTS, Doctor
Related Discussions
3 Comments Post a Comment
Blank
492869_tn?1285022533
Unfortunately, I'm not aware of a Dysautonomia Specialist in your area.  Hopefully another member of our community will be able to chime in with a recommendation for you.  Have you tried making an appointment with a Cardiologist or Neurologist at a local academic teaching hospital for treatment?  Since you already have a proper diagnosis, perhaps they will be able to treat your condition.

Benzodiazepines such as Klonopin are sometimes used in Dysautonomia patients with significant anxiety.  Beta blockers are another common treatment, which can help with both anxiety and tachycardia.

You mentioned increasing your sodium intake, have you also increased your fluids?  That too is very important as patients with Dysautonomia are very sensitive to dehydration.  Sports drinks such as Gatorade are often recommended.

Dysautonomia Specialists:
http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Specialists/show/717?cid=196

Dysautonomia Treatments:
http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Treatments/show/171?cid=196
Blank
612876_tn?1355518095
I'm not sure if it works the same way at Mayo as it does at Cleveland Clinic, but now that you are an established patient there, you should be able to get some additional guidance by phone.  I would definitely recommend finding a local cardiologist or neurologist at a major teaching hospital to oversee your care (working in concert with your primary care physician), but it may be the case that your local doctor can call the doctor(s) who evaluated you at Mayo and ask for further guidance on what your treatment plan should be and what medications to try.  

This is how my care has been managed locally since I was seen at Cleveland Clinic, with occasional calls by myself or my doctors here to get advice or clarification on my treatment plan or changes in my condition.  My doctor in Cleveland has continued to be helpful.  So maybe getting back in contact with Mayo over the phone would be worth a shot as well as looking for a specialist locally to oversee your treatment.

I'm sorry I don't know of any specialists off the top of my head in your area.
Blank
Avatar_f_tn
I have had this since june 2010 and it is now being more widely recognized. Suprisingly, the electro physiologist (EP) cardiologists are the experts on this.
I have cardiomyopathy, was referred to EP and both MD I saw immediatley identified I also have POTS
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
Top Arrhythmias Answerers
1124887_tn?1313758491
Blank
is_something_wrong
Oslo, Norway
612876_tn?1355518095
Blank
Heiferly
Columbus, OH
Avatar_m_tn
Blank
Ball123