Aa
A
A
Close
171927 tn?1294027323
Does this sound familiar? Kind of lost!
Hi, I'm a 29 year old female experiencing a lot of crazy symptoms, new here and wanted to get some feedback.

I'll try to summarize. This has been happening on and off since 2006.

Last year, I stated to get some pretty high tachycardia, went to see a cardiologist, who waved it off as anxiety.
Most recent EKG and 48 hr. holter monitor indicate sinus rhythm 56 bpm (asleep) up to 166 bpm with ST-T wave changes. This heart racing is happening 41% of time. About the amount of time that I am out of bed.

I have had a positive ANA 1:160 speckled and homogenous pattern (anyone else on this forum have a positive ANA w/ Autonomic Dysfunction?)

My symptoms are:

Urgent bowel and unpleasant/frequent trips to the washroom (consistent)
120 -160 bpm daily Tachycardia (heart racing upon standing / mostly normal when laying down / consistent)
Head / ear pressure
tingling / numbness / flutters in extremities
fatigue
weakness
etc...

I do feel as though there are changes in my blood pressure, and have observed these changes at various emergency departments / doctor's office, but I do know that blood pressure can fluctuate. However, I have seen mine at 130/90 and 64/46! My consistent range is around 120/70 (sometimes a little bit lower).

The only other thing that they've found is that I have a liver hemangioma that appeared over the last year (3.4 cm). Maybe not related. Also, I have a high neutrophil / low lymphocyte count, but this might also not be related.

Can anyone tell me if they experience any of these symptoms, too?

I also wondered if it was at all common or possible to test positive on an ANA with  Autonomic Dysfunction?

Thanks a lot for your attention :)
Cancel
3 Answers
Page 1 of 1
171927 tn?1294027323
Hi Meagan,

I'm still in the waiting stages. I see a GI/Internist on Wednesday. I have not been diagnosed with anything yet. In the past, it has all been attributed to stress. I'll try and look in to the possibility of getting a blood pressure / heart monitor. That's good advice. I have not fainted yet, but it has definitely been uncomfortable.

Does your heart rate go that fast? How dangerous is this and what can I do to minimize the chances of something bad happening? Just stay in bed?

The positive ANA can apparently mean a lot of different things. Lupus being one of them.
I really do need to see a rheumatologist and hoping that I can get a referral really soon!

Thanks for the link, I'll take a look. Really appreciate your answering me.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
171927 tn?1294027323
Also wanted to ask what causes the numbness / tingling? Do you know?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
171927 tn?1294027323
HI Meagan, I wanted to update you :) I saw the internist last week. He has ordered an ENA panel, which could give me some answers re: the possibility of lupus. In the meanwhile, I had the first of a bad episode the other night, which resulted in an ambulance trip to the ER. It was a near fainting episode. The paramedics tested my sugar and it was fine, and by the time they got there, my BP was normal: 120/80. However, I did notice that my BP dropped while I was at the hospital to 105/53, so I bought a blood pressure / heart monitor. I used it for the last two days (until it broke, haha, getting it exchanged tomorrow). Anyway, I was measuring my BP and it fluctuates from 120/77 to 97/63 and the lowest reading I got (when waking up) was 84/45. It mostly stays around 105/65 (approx). Do you think this is normal? I haven't noticed a huge drop when I stand up, but there's definitely fluctuation there. Maybe the amount of fluctuation is normal? When is BP too low or dangerous? I have been  to the ER so many times since October, so if I can avoid visiting there if I don't have to, I'll be happier about things. Is there an absolute emergency danger zone when it comes to BP? I will definitely keep you posted and thanks for all of your advice so far. The health care system is so slow where I am.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Comment
Post Comment
Your Answer
Avatar universal
Answer
Do you know how to answer? Tap here to leave your answer...
Answer
Answer
Post Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources