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Dysautonomia Clinic in California?

by the_mighty_gooch, Nov 05, 2009 05:10PM
Does anyone know of a Dysautonomia Clinic in California? I heard there is one at UC Davis but couldn't find it online. Also, I heard that the UCLA clinic is substandard. Which is the most comprehensive clinic in the country: is Vanderbilt superior to Mayo in Minn?

Thanks!
Member Comments (1)

by Heiferly, Nov 07, 2009 12:21PM
To: the_mighty_gooch
I talked to several neurologists from UCLA on the phone earlier this year; they have none of the major autonomic testing equipment (QSART, radionuclide hemodynamic, etc.) even though they are one of the nation's top hospitals.  Several of the neurologists I spoke with there were ignorant of the names of the tests, implying to me ignorance of the field of autonomic neurology in general because you can't keep up to speed with peer-reviewed journal articles in this field without coming across the names of these tests.  There is one doctor at UCLA who lists herself as an autonomic neurologist, but again, unfortunately there is no autonomic clinic there for testing.

In fact, there is no autonomic clinic that we're aware of west of Mayo, and we've hunted extensively.  

So far as comparing Vanderbilt to Mayo, I would say Mayo is superior in terms of national ranking overall as a hospital so if your case needs to be investigated beyond the realm of autonomic, Mayo could be a superior hospital for you.  Vanderbilt gets a great deal of research money from the government for autonomic and so has many clinical trials available.  Likely, for many patients, the difference is splitting hairs--these are two of the best hospitals in the country and two of the only autonomic clinics in the world.  They both house some of the most published and highly respected experts on dysautonomia on earth, likewise with Cleveland.  
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