For all members who are on facebook (or not), I have found this page about a book written about having dysautonomia - one sufferer tells her story. I have not read it yet, but I am in the process of ordering it. The author is a fellow sufferer and is trying to raise awareness of this condition. She is also trying to get US programmes to do a feature show to raise awareness.
If anyone is interested below is the link to the page:
She also has a group on there, The Faces of Dysautonomia, for people to share personal stories, etc., if anyone is interested in checking that out you can find it by searching on FB. (I think if I post a direct URL to group there it'll automatically get blocked so rather than try and have it ****ed out, I'll just leave y'all the name and I'm sure those who use FB know how to find groups by name.)
I've only heard about it so far too, but would love to hear reviews here from those who are first to get their hands on it whenever people do get done reading it.
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