Found a very caring primary care physician!!!!

[sarah0683]

I went to a consult with a new PCP today! She was the nicest woman and so sympathetic. She quietly listened to what I had to say about myself. And she listened when I told her I felt like I was not listened to by my previous doctor. She said it sounded like my previous physician did not take me seriously. She said I believe your symptoms are very real for you and this is what I would plan on doing if you choose to continue coming to my practice. She said she is not willing to start playing with my medications because she openly admits she does not know much about dysautonomia. She however will refer me to a General Internist and a Neurologist.
My questions are:
What kind of tests will these doctors do?
Will I have to have another Tilt Table Test? That was really unpleasant for me when I had it done 6mos ago.
Are we finally headed in the right direction?

[Mom2four85]

It's so rare to find dr's who take the time to care and listen, but when we do we better hold onto to them and make sure they know we appreciate them =)

I've fainted & had arrhythmia's since age 9, until I was 42 no doctor listened to me about how bad I felt and how severe my symptoms were until I lucked into finding this PCP by chance who was open late when I broke my foot in June 2009.  I kept going to him until one day I went in for an appt and he was gone! I shocked and angry because I felt cheated hehehe no more  caring dr.

I think I've finally found a great NP in a new practice who is similar to that dr.  like your dr she listened to me and asked about things she didn't know or understand, which was very little - luckily for me because I thought I would have to go through numerous dr's to find one that would listen and not just treat me like a number.

I haven't been to a GI but the neuro I went to did some tests of her own, reflexes hot/cold strength blood work etc.  My original EP is the one who did my TTT so I'm not sure if a GI or neuro does them also.  They may take the results of the TTT you had done before and not make you redo it - if someone wants me to redo mine I will refuse - no thank you...it was horrible and not something I want to revisit any time soon.

Good luck with the GI and neuro.

[buddysmom1]

I went though 8 months of doctors before getting a diagnosis I also had to go to NIH in bethesda b/c they were confusing my dysautonomia with pheochromocytoma. I went though so many tests most of the MD's telling me I was crazy sure all of a suden I went crazy and got depressed after playing tennis five days a week and working out every day and leading fullfilling working and active life I decided I wanted to live in my bed and get high heart rates and anxiety and depression and tremors and headaches and lose 40 lbs and not be able to sleep b/c I had nothing wrong with me but depression and anxiety I refused to give up I actually spent one month in a hotel room with my poor mother while I underwent tests in another state one test after another till I finally said maybe I have pots, I have been reading the symptoms on the internet and the DR. said well maybe lets refer you to an electrophys cardiologist that is who apparently diagnosis this but what I found out is they all don't treat it you have to find the right one who knows just how to do the tilt table test I had three of them all done differently u would think there would be a standard way to do this test but no all done in a different way the first two were horrible the third one was done by my current MD and done correctly and not in a horrilbe manner very caring and they put in a caring setting in the hospital just did not drag me like a rag and put me up on the table with no explination and then when it was done boom you are out of here without letting me rest for two seconds. So yes you are on the right path but I think the only one that can diagnosis and treat this is an electrophy cardiologist, and depending on where you live you hopefully can find one. Ok good luck