Dysautonomia (Autonomic Dysfunction) Community
Hot showers, what do you say?
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Hot showers, what do you say?

Does anyone else feel like fainting in the shower? Warm shower; my heart rate goes up as hell and I start to feel nausiated..
6 Comments Post a Comment
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Avatar_n_tn
Your body is not tolerating the hot water. You need to cool it a little bit.
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Avatar_m_tn
Yes definitely. Is it the same for you?
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2078882_tn?1333489661
yes, no hot showers at my house, in fact too much heat of any kind will make me spiral downhill in a hurry!
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Avatar_f_tn
After years of being an "easy fainter" & complaining to the drs I had to get out of the shower with shampoo in my hair to lie down soaking wet on my bed, and they look at me & said to clean out the mold or just shrugged their shoulders, I got tachy one day (when I was in great shape btw, with no preceding virus I know of but a lot of syncope and one I should have had checked for a head injury cuz I hit my head & had an atypical headache endlessly w/memory problems hat eventually resolved & bam! my usual hr in the 60s had me so SOB I couldn't talk & thought I had a breathing problem more. My hr was in the 170s-180s.. Yes, I think the shower is the best test of OH and POTS there is, better than TTT (preferably. W/simultaneous catecholamines testing), Daxor blood volume analysis & serum catecholamines, urine sodium, vit D, gastric emptying, anemia, sweat tank, treadmill (my top choices in terms of dx & tx), but the shower says it all usually & if u can't build up aerobic tolerance no matter what (I own a stepper & lifted free weights for years &' did all kinds of stuff but the shower, stair masters, jogging..  If u can handle those, I doubt u have Dysautonomia, IMHO, but I'm not an MD. I just know too many MDs & patients.
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Avatar_f_tn
Get a shower chair, a reacher & also bending is as hard on the heart as reaching. If u blow dry yr hair, medical supplies stores have blow dryer stands. Keep ur arms below ur heart. Stand up slowly. Ask ur doc for an rx for 30-40 strength compression waist high stockings. Get fitted. Coffee helps many, but bothers some..it's a vasoconstrictor. Take ur Bp before u shower. Avoid extreme temps and altitudes. Get a good Bp monitor. Mine is the best digital, Panasonic ew3109 but learning to use a stethoscope (best are littman but pricey) and cuff is most accurate. iPhone makes an app if u pay for the upgrade $1.99 I think, it is as accurate as my accurate FDA pulseoximeter and keeps a record of ur hr sitting & standing. Yep. Does orthostatics! Heart Rate by Azumio! U place finger on camera lens gently & can wear nail polish!
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Avatar_f_tn
Hello....intrigued by your comment regarding drying hair and keeping arms below ur heart.

I have been to 40+ doctors to find out what is wrong with me.  Went for Tilt Table Testing 2 years ago and cardiology said drink water and eat lots of salt.  Tried compression stockings...nothing.  Kept plugging away at drs. offices.  

My ENT and ENDO both claimed I needed an electrophysiologist (EP) as they thought the problem was due to blood pressure.  Saw him last week and he rx me Fludricortisone and was baffled as to why no one had done this in the last 4 years.  Yikes !!!

The reason your statement intrigued me is because recently I have been complaining about feeling like it is such an effort to blow dry my hair...my arms are weak and shaky and just not strong enough to do it.....all the drs. were like WTH, we have no idea.  Thank goodness for this EP is all I have to say.  

Coffee seems to help me however I have to drink a full gatorade in the morning then have the coffee.  Sounds icky but for me it seems to help some things.

The shower thing....that is one of the first things I was complaining about...getting out of the shower and felt like I ran a marathon and had to lay on be with ceiling fan or go outside in freezing cold to cool off and still didn't feel better.  Very unusual as husband used to always tell people of the steaming hot showers I would take until the hot water ran out...that is history with all this.  Can't stand the heat in the summer anymore either and I used to be a beach bum ALWAYS....would stay on Miami beach all weekend soaking in that sun/heat.  No more.

Does the outdoor heat affect you as well?

Is there a diet to help with POTS?
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