Dysautonomia (Autonomic Dysfunction) Community
How often do you pass out?
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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How often do you pass out?

There's such a range of symptoms and severity with dysautonomia.  I thought this might give us an idea of how many people are in a similar situation.  Unfortunately, there aren't enough answer choices, so please comment below.  How often do you experience syncope?
50%
 (6) 
Never or only 1-2 times
16%
 (2) 
At least once a month
25%
 (3) 
At least once a week
8%
 (1) 
At least once a day
12 Members voted
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9 Comments Post a Comment
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881165_tn?1265988188
Well, heck, I forgot to say "On average", because I know it really varies for some people.  And yes, my response is at least once a day, after every known treatment out there.
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726204_tn?1285879778
I have never actually passed out but have the feeling I am going to on a daily basis...like today I have been really unwell.  Every 5 mins I feel like i'm about to pass out but I don't!!!  and my BP is within normal range!!
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Avatar_m_tn
Not fully in quite some time.  Just 2 or 3 times in lifetime.  Although nothing was done medically and nobody made anything of it... I think I self-taught avoidance behaviors after those first few times since I'm not overly prone... just on the edge (near syncope is quite frequent at times).
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Avatar_f_tn
On average I usually do it about once a week. But I also agree with evo.  Most of the time I just feel kind of loopy.
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Avatar_f_tn
I come close frequently but never have passed out.
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967168_tn?1343732745
mine on average was about 1 time a month...getting better though because I started midodrine 1 mth ago and haven't passed out totally yet - just pre-syncope and some dizziness

is a normal part of complete syncope to have no palpable pulse? I'm just wondering since they put that on my tilt test and I don't remember passing out completely but I had no clue I passed out either; it just happened and then I woke up and had my feet up on the table
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881165_tn?1265988188
Not too many people lose their pulse or are asystole during a tilt test, but there are some of us.  I generally know I'm going to pass out, but not during tilt tests.  In fact, I apparently have conversations with the techs that I totally don't remember, and then my heart just stops.  I think it's probably different for everyone.
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967168_tn?1343732745
Thanks :)  I know each time I pass out or pre-syncope is different, which I find weird.
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Avatar_f_tn
I was having pre-syncope several times a day up until 2 months ago. I was diagnosed with POTS, but nobody ever told me to stop smoking. So, I quit on my own, and though still very fatigued with low BP, the near syncope has all but vanished. I'm pretty proud of myself. I consider this just another step in the "getting better" from POTS process.
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