There's such a range of symptoms and severity with dysautonomia. I thought this might give us an idea of how many people are in a similar situation. Unfortunately, there aren't enough answer choices, so please comment below. How often do you experience syncope?
I have never actually passed out but have the feeling I am going to on a daily basis...like today I have been really unwell. Every 5 mins I feel like i'm about to pass out but I don't!!! and my BP is within normal range!!
Not fully in quite some time. Just 2 or 3 times in lifetime. Although nothing was done medically and nobody made anything of it... I think I self-taught avoidance behaviors after those first few times since I'm not overly prone... just on the edge (near syncope is quite frequent at times).
mine on average was about 1 time a month...getting better though because I started midodrine 1 mth ago and haven't passed out totally yet - just pre-syncope and some dizziness
is a normal part of complete syncope to have no palpable pulse? I'm just wondering since they put that on my tilt test and I don't remember passing out completely but I had no clue I passed out either; it just happened and then I woke up and had my feet up on the table
Not too many people lose their pulse or are asystole during a tilt test, but there are some of us. I generally know I'm going to pass out, but not during tilt tests. In fact, I apparently have conversations with the techs that I totally don't remember, and then my heart just stops. I think it's probably different for everyone.
I was having pre-syncope several times a day up until 2 months ago. I was diagnosed with POTS, but nobody ever told me to stop smoking. So, I quit on my own, and though still very fatigued with low BP, the near syncope has all but vanished. I'm pretty proud of myself. I consider this just another step in the "getting better" from POTS process.
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