DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
Is this a autonomic dysfunction?

Is this a autonomic dysfunction?

hey there Im Chris, and im 24 and 6ft 3 around 10 st. I suffer from mild asthma, i also posted this in the heart boards aswell as im not sure what this could be. Please be patient as i have quite a bit to say..

Over the past 6 years ive had these symptoms Tiredness, fast heartbeat, occasional palpitations, nervousness, a lack of energy, intolerence to heat (makes me feel drained) sometimes trouble sleeping, veins swelling/bulging in my lower arms and legs( which is most the time) ,cold hands.. noticed my nails sometimes go purple, achey (achy) legs, dizziness, coughing up phlem, visual diturbances such as pulsing in outer sides of my vision and occasionally a flicker when i go from being in the light and going straight into the dark.

quite a while ago i decided to go to my GP because i coughed up blood in my phlem, They referred me to hospital for tests, I had a x-ray and CT scan of my chest which came back clear and they said it was likely due to chest infection which i was given antibiotics for. I also had multiple blood tests, and blood pressure test which also came back fine aswell as multiple ECG since then. which they said was fine apart from noticing that i have a fast heart beat they couldnt find any other problems.

Since then i have been experiencing more symptoms and the same ones but worsened. Ive had tiredness, palpitations(daily), very achey (achy) legs, tingling in my fingers and feet (sometimes only slight) and dizziness, a few panic attacks and some anxiety, racing heart , and so forth. I noticed though that i tend to get palpitations everyday and they occur more so in the evening. sometimes bending down can give me one and i have had them during sex which ussually means i have to stop to calm myself down.

I ve been to see my GP for another blood test and blood pressure test which came back clear it also tested my thyroid levels which were fine infact the only thing they found was a deffciency in vitamin D, which they prescribed vitamins for me. I have also been into hospital again since for the day because i felt really bad and started to panic which made it worse and which they gave me another blood test which was fine aswell as a ECG.

A few months after i made an appointment to have a ultrasound done of my heart (echo cardiogram) results from that came back normal.
They cant seem to find whats wrong with me they just say its anxiety and pscyological but im not convinced.
I would also like to add that im not on any other drugs of any kind and i rarely drink and i dont smoke. I take my inhalers for my asthma Clenil modulite (brown) 2 puffs twice a day and ventolin (blue) only if i get out of breath.

I had pestered my gp enough that she has given me beta blockers to help with the palps and racing heart. I am on 1.25 mg of bisprolol which i have been taking for a month, after a month i went back to see her told her that its helped with the racing heart but im still getting palpitations and all the other symptoms from day to day. I have insisted on going to a palpitation clinic because im very worried. I'm going to get them to give me a holter so i can show them my palps. The only problem is i cant get a appointment untill march. This is really effecting my quality of life i need to find what the problem is so i can deal with it.

Does this sound familiar to anyone?  any suggestions would be very welcome, i am at my witts end with this. I am desperate for answers

thanks for reading
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Avatar_f_tn
Hi there.  I have every single one of your symptoms that you described and I have Postural Orthostatic Tachycardia (POTS).  POTS is a dysautonomia and is defined as an increase in heart rate of 30 bpm or up to 120 bpm upon standing.  When this all started for me, I had tachycardia all the time (Inappropriate Sinus Tachycardia) but once I was put on a beta blocker, it helped.  I knew I had POTS before even seeing the Cardiologist because I checked my bp and hr myself after standing and it went up pretty high so you can check yours as well.  I have palpitations too and when I had the 30 day holter monitor, I was sure they would show up but nothing did... just the tachycardia.  By the way, your own doctor can order the holter monitor.  You don't need a specialist for that.  With POTS, most tests are normal such as holter and ultrasound.  You should see a Cardiologist and have them do a tilt-table test to verify the POTS then find a facility that does autonomic testing.  Good luck and let us know how it goes.
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Avatar_m_tn
hi thank you for your response, my gp said that id have to go to a clinic in order to obtain a holter, im going to see how that goes, il deffinitly suggest the possiblity of pots to them, I am on a beta blocker now and it does help with the tachycardia, still get the palpitations though and other symptoms.

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Avatar_m_tn
can anyone else help with suggestions?
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Avatar_m_tn
Still getting these symptoms, been on beta blockers for a few months now, last few months been getting chest pains on the left side, and a aching feeling in my chest that sometimes lasts for a week. Today i have had quite alot of palpitations while walking home, and this past week ive been getting weird dizzy feelings in my head. anyone got the same problems as me?
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