Dysautonomia (Autonomic Dysfunction) Community
Looking for Doctor
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Looking for Doctor

I live in upstate NY and am looking for a doctor who specializes in autonomic disorders.  I was diagnosed with POTS (2001), Chronic Fatigue Syndrome(2001), and Fibromyalgia (1998).  My CFS/FMS specialist just retired.  I would like to get a more extensive evaluation of my POTS, including whether I have the hyperadrenergic type, or if my POTS is secondary to joint hypermobility syndrome....  

Can anyone recommend a doctor in NY, Massachusetts, or Pennsylvania area?  I have heard very good things about Dr. Blair Grubb in Toledo, Ohio and also Vanderbilt but am hoping for someone closer.  Also worried that the waiting list will be long to see Dr. Grubb or Vanderbilt...

Thanks for your help!  

Laura
Related Discussions
2 Comments Post a Comment
Blank
Avatar_f_tn
Hi Laura, there is a list of physicians (by state) on www.dinet.org.  That might be a good start for you.
Blank
Avatar_n_tn
I am so sorry for what you are going through.  I was diagnosed with POTS 3 months ago after being sick for almost 3 years.  I actually went to school upstate NY in Oneonta and have had dozens of trips to the ER and no one could figure out what was wrong with me!!  I came back home to L.I. after graduation and was finally diagnosed with POTS and possible Lyme.  I too am looking into autonomic specialists and belong to the DINET forum.  A lot of people go to Vanderbilt Universaity or MayoClinic in Minnesota...but I think NYC is our best option!!!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank