Looking for a Dysautonomia Doctor for adults in Houston, TX

Hi everyone.  

I live in Nacogodoches, TX and I am looking for a specialist in Houston.  I was raised in Houston and still have family there.  I do have a nuerologist in Houston but I was hoping to find someone who specialises in Neurocardiogenic syncope or Dysautonomia.  

I am also hoping to find someone to email with that has similiar issues.

Thanks in advance for reading this and give me a holler if you have the NCS or Dysautonomia or both.

Tks again,
TXFlutteby

[txgirl6080]

I am a 42 year old woman who lives in Houston. Last year, I went to a doctor from Methodist that diagnosed me but once I started studying the condition and asking questions, I realized he was very limited in his understanding of the condition. I have been unable to find a doctor in Houston that understands POTS. Currently, I see Dr. Amer Suleman in Dallas, Texas. He is an electrocardiologist who has a special interest in POTS. He also has his own autonomic testing facility. Very kind and patient doctor. Easy to get into but hard to call with questions or refills.

[Heiferly]

Almost everyone here is already diagnosed with some form of dysautonomia (and I'd say about half have neurocardiogenic/vasovagal syncope either as their primary form of dysautonomia or as a concurrent diagnosis along with another form of dysautonomia such as POTS), so you're welcome to openly discuss any questions you have about dysautonomia and/or NCS here on the forum if you'd like to.  We have several current threads relevant to these topics already ongoing at the moment that you can see if you look at the recent discussions such as:

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Why-so-much-fatigue-with-NCS-and-POTS/show/1372019

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Excellent-Article-on-POTS-and-IST-/show/1370043

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/pots-and-ncs/show/1371747

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Any-tips-for-first-Neurologist-appointment/show/1370602


We'd love to have you start your own topic (or a couple!) as well!  We do have a private messaging system on the site if you'd rather communicate privately.  You can send a private message to someone by hovering over their username anywhere you see it in blue and clicking on the link that says "send message" that is in the drop down menu that appears when you do (or you can click on their username to navigate to their profile page, and select "send message" from there).  

Welcome to our Community!
Best,
-heiferly.

[TXflutterby]

Thank you for taking timme to comment on my request.

I have been diognosed with NCS for 5 years but I have been having epioseds prior to 2005.  Just did not know what was happening.  I was diagnosed in 2009 with the Dysautonomia by Dr Kimberly Monday in Pasadena, TX. I like Dr. Monday, she is a good doctor and a Nurologist.  I just want a second opinion who specialty is NCS & Dysautonomia.

I have developed new sympthoms and with what I have read it is part of the Dysautonomia.

Thank you for listing.
TxFlutterby

[txgirl6080]

I am a 42 year old woman who lives in Houston. Last year, I went to a doctor from Methodist that diagnosed me but once I started studying the condition and asking questions, I realized he was very limited in his understanding of the condition. I have been unable to find a doctor in Houston that understands POTS. Currently, I see Dr. Amer Suleman in Dallas, Texas. He is an electrocardiologist who has a special interest in POTS. He also has his own autonomic testing facility. Very kind and patient doctor. Easy to get into but hard to call with questions or refills.

[sue_1234]

Checking to see if I can post...

[sue_1234]

Okay, I can post!  Couldn't remember if I was registered!

I have had POTS about the same time length as you, almost 5 years for me.  I have seen local doctors and "specialists" in TX.  I have not had any help yet.

I have just started a new journey with doctors in Houston(cardio, neuro, and endo).  I have alot of testing to do in the next few weeks, so won't have any results/opinions until sometime in December.  I do get interest, which has been lacking in my other doctors.  One even mentioned to give him TIME to figure this out-it is a journey.  If they give me interest in figuring this out, I will give them my time, as that's all I have right now.

I just finished a 24-hour urine and now have blood work to do.  I will PM you soon and let you know the the physician's group that is taking my case over.

[sue_1234]

A year later now, and I would like to say nothing in Houston worked out.  The doctors would take an interest on the first visit, and then when the labs would come back normal, they'd just "drop" me by saying "oh well".  I kind of thought being in Houston that they would delve into the issue a little more, but NO!  The cardio that made the statement, "give me time and we'll get it sorted out"--he quit after the next visit!  He had me try a beta blocker, and with half of a pill on the first dose, my blood pressure dropped to 75/45 standing and felt really faintish.  I had to literally lie around in my recliner until it wore off.  When I told him what happened at my follow-up visit, he said well if I won't take the medicine, then that's all he can do.  So much for giving him time to work it out!

I am so surprised at the level of non-care I received in Houston--the largest medical "enterprise" in the US!  Since my post last year, I have also gone to a few other doctors in Houston for things related (gi, etc.).  EVERY appt. has been non-productive.  Not one doctor has gone past the second visit.  I really don't understand it!