DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
Newly Diagnosed Autonomic dysfunction, POTD

Newly Diagnosed Autonomic dysfunction, POTD

Hi, I'm new to this forum. I hope someone can help. Has anyone been going through this??  I've been dealing with anxiety about having an episode being around people. When I have problems, I normally get confused, foggy brain, left face goes numb, arm is heavy and eyes are funny, breathing seems different as well. Bp used to go really low prior to me starting the florinef. I have had recent episodes of my lower leg shaking uncontrollably twice recently. Over the last 3months, I've had episodes of fainting, also staring episodes "seizure like", but I am aware, just out of it and cannot talk,  along with 3 bad seizures shaking all on the floor that I do not recall. I had seizures worked up at Cleveland clinic, and they assure me the seizures are not from epilepsy. Since I've start florinef, seizures are not occurring thank the lord. But I still have episode of confused, foggy brain, left face goes numb, arm is heavy and eyes are funny, breathing difficulty at times when I have done too much or have attempted to exercise. Heart palpitations occur at all different times. I has even come on when I got stressed out. I've also noticed it gets much worse prior to my period. I feel so out of control with this. I was a healthy, working, active person in Sept, now I feel like my life has been taken away from me. I feel like I am going crazy.
**Autonomic testing done at Cleveland Clinic Florida, showed Autonomic dysfunction, also told I have POTS, they are not sure why I am having autonomic dysfunction. They've been testing me for everything, and I''m so exhausted.
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