DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
POTS and MVPS question

POTS and MVPS question

I'm glad I found this forum.  
I was diagnosed with mitral valve prolapse and MVPS when I was 12.  I'm now 27.  Since my original diagnosis I've had alot of conflicting information.  One cardiologist will say I have a mitral valve prolapse, the other will say I don't.  They all say I have a dysautonomia but some will claim I have POTS while others claim that it's MVPS (which apparently you can have even if you don't have a prolapsed mitral valve). It seems like that only consistent information I get is that I do indeed have some form of dysautonomia.  
I'm wondering if anybody on here can tell me the differences/distinctions between POTS and MVPS.  (I'm going to the cardiologist again on the 11th. so I'll be sure to bring it up with him as well).   So far both seem pretty much the same to me.  I'm hoping if I can get an idea about what makes one unique from the other, I'll get a better handle on what's going on with my situation.

Thanks
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Hi--I'm not a doctor, but a good website is http://www.mvprolapse.com/

I can relate to the confusing diagnoses situation. When I was turning 15 (back when cardiology was pretty much in the Dark Ages because I'm 52 now), they did a heart catherization and said my murmur (since birth) was from pulmonic valve stenosis. Then when I had symptoms in my 20s, they did an echocardiogram (for the 1st time), and said I don't have that, I have MVP. Then a few years later, they said MVP plus mitral regurgitation. Then a few years later in my 40s if I remember correctly, they said no MVP was evident but other regurgitation, etc.

From what I understand, the diagnosis and classification of what is considered MVP has changed over the years; what doctors used to consider to be MVP they are now not calling/classifying it as MVP. So in your case, that might be part of the confusion. Also, apparently as the heart stiffens up, MVP can no longer be an issue (probably more pertinent to me than you, due to my age.)

I have never been diagnosed as having dysautonomia as such (that I know of, anyway), but I do have lots of sensitivities and respond differently to many things (temperature changes, medications including over-the-counters, procedures, lack of sleep, etc.) than most other people--which leads me to think I have some degree of dysautonomia.

Let us know how your appointment goes and what you find out. Good luck!
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