Hi, there are several of us here whom have POTS and who can relate to your symptoms and frustrations. Feel free to post here anytime with questions or just to say hi.
Take a look at the link below, it takes you to one of our health pages giving info on dysautonomia specialists - maybe you may be near to one of them:
http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Specialists/show/717?cid=196
How were you diagnosed? Did you have a Tilt Table Test?
Which of your adrenal hormone levels are low? If you have low cortisol and sometimes low aldosterone this can cause POTS symptoms. If this is the case treating this would hopefully resolve your symptoms.
What treatment have you been put on?
Someone else here may be able to give you specific details of a specialist near to you and give you advice on your insurance.
x