Dysautonomia (Autonomic Dysfunction) Community
Pacemakers for POTS
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Pacemakers for POTS

Doctors suggesting pacemaker with POTS, is this safe? I am currently on Florinef and Mestinon, but Heart Rate all over the place. ???
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They say that ablation isn't too safe for people with POTS because they can wind up pacemaker dependent.  I have never heard that having a pacemaker with POTS was not safe.  My heart rate is all over the place too, but I've not had a doctor suggest a pacemaker (maybe mine's different from yours).  Did they say was what led them to believe a pacemaker would be appropriate in your case?  If you can and since you are concerned especially , I'd recommend getting a second opinion from somebody who is very familiar with POTS and how it behaves.
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