Please, We need help!!

[Shirli]

Anybody know of a specialist in Oregon? (orthostatic Intolerance) CFS
We are desperate please help!!

[Shirli]

Thank you so much for your prompt response I will follow you leads.
Shirli.

[enzymelover]

  Dr. Feldman is a kidney doc with no training in pediatrics, who, according to this article, "stepped outside of his specialty" to help people with POTS. The article does not specifically say whether or not any of his patients are adults, but does imply they are adolescents.
I would think he would be willing to take on anyone who came to him for help, after reading this article.

It is exciting how more doctors seem to be popping up lately, isn't it?

[Heiferly]

Doesn't Dr. Feldman do pediatrics?  Or does he do both kids and adults and I'm thinking of the wrong doc?

[enzymelover]

  OK, it was www.bendbulletin.com   The article is entitled "Every Step Is a Battle". The doctor's name is Dr. Michael Feldman.

Hope this helps.

[enzymelover]

globalhiking recently posted an article here about a doctor in Oregon helping POTS patients. Look for  POTS AND KIDS in this forum.  

[Heiferly]

Oh, I should have mentioned, either a neurologist or an electrophysiologist-cardiologist usually is the specialist to see for orthostatic intolerance syndromes.  It varies by hospital which department tends to cover these cases, so you may have to inquire a bit within both departments to find a good fit.  Some patients see doctors within both specialties just to make sure all bases are covered.  

[Heiferly]

Your timing couldn't be more impeccable.  Yesterday I wouldn't have known what to tell you, as options were rather limited out West for dysautonomia.  I may have found a lead.  I will post more information as I get it, but here's the thread about what I know so far.  Watch there for updates, and by all means, feel free to contact that hospital yourself to try and track down a specialist.  I'm not suggesting you have to wait on my updates first, hehehe.  

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/HOLY-MOLY--I-found-one-of-the-MAJOR-autonomic-tests-WEST-of-Mayo/show/1264582

Please let us know any other questions you have that we may be able to answer, and feel free just to come by and post if you need to vent as well.  We're a pretty laid-back, welcoming crowd.  

Best wishes,
-Heiferly.