Dysautonomia (Autonomic Dysfunction) Community
Please recommend a good website
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Please recommend a good website

Can someone give me a link to a good website that describes hyperadrenergic POTS and lists treatment options (if there is such a site)?  
Related Discussions
5 Comments Post a Comment
Blank
560501_tn?1383616340

   Hi there, i do not believe we have talked yet.
Welcome to the Forum. if these are not enough info or help
let me know and I will shoot you a couple more.

Hope these help:
http://www.dinet.org

ndrf.org/eve/forums/a/tpc/f/2621035343/m/7371057845

dinet.ipbhost.com/index.php?s...showtopic=10067&mode.

Take Care,
~Tonya
Blank
492869_tn?1285022533
What kind of information in particular are you looking for?  In the world of Dysautonomia, treatment is usually symptom based.  Unfortunately, there is no one treatment that is helpful to all H-POTS patients.  We are working on a list of treatment options global to all forms of Dysautonomia in the Health Pages that might be helpful to you.

Dysautonomia and Autonomic Dysfunction Treatments:
- http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Treatments/show/171?cid=196

Further Reading on Dysautonomia and Autonomic Dysfunction:
- http://www.medhelp.org/health_pages/Neurological-Disorders/Further-Reading-on-Dysautonomia/show/696?cid=196
Blank
726204_tn?1285879778
Hi, below is a link to a website with info on POTS:

http://circ.ahajournals.org/cgi/content/full/117/21/2814#TBL1189801

and a link to a treatment table for the different forms of POTS:

http://circ.ahajournals.org/cgi/content/full/117/21/2814/TBL2189801
Blank
Avatar_f_tn
I created a website   http://www.potsinfo.com    which has YouTube videos of others with POTS as well as videos from the Mayo Clinic, etc. There are also links to other website discussing POTS as well as doctors that treat it.

Meds work different for different folks. However, I have had feed back that the special exercises by Dr. Levine are really making a HUGE difference so folks can get off the meds:
Dr. Benjamin David Levine - Cardiologist Dallas TX
IEM, 7232 Greenville Avenue Suite 435,
Dallas, TX 75231 -
(214) 345-4619
Website: http://www.texashealth.org/body_secure.cfm?xyzpdqabc=0&id=2322&action=detail&ref=3463

I also recommend the book  From Fatigued to Fantastic by Dr. Jacob Teitelbaum.

Please note that I am not a doctor or nurse, just a mom helping her son deal with it and a mom having to read a lot. I created POTSinfo.com to both provide a quick reference place for me as well as a link to give people who thought my son "looked healthy".
Blank
560501_tn?1383616340

  Thanks for the Web Site....

~Tonya
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Arrhythmias Answerers
612876_tn?1355518095
Blank
Heiferly
Columbus, OH