Aa
A
A
Close
Avatar universal
Please recommend a good website
Can someone give me a link to a good website that describes hyperadrenergic POTS and lists treatment options (if there is such a site)?  
Cancel
5 Answers
5 Answers
Page 1 of 1
560501 tn?1383616340

   Hi there, i do not believe we have talked yet.
Welcome to the Forum. if these are not enough info or help
let me know and I will shoot you a couple more.

Hope these help:
http://www.dinet.org

ndrf.org/eve/forums/a/tpc/f/2621035343/m/7371057845

dinet.ipbhost.com/index.php?s...showtopic=10067&mode.

Take Care,
~Tonya
Comment
Cancel
560501 tn?1383616340
Comment
Comment
Submit Comment
492869 tn?1285022533
What kind of information in particular are you looking for?  In the world of Dysautonomia, treatment is usually symptom based.  Unfortunately, there is no one treatment that is helpful to all H-POTS patients.  We are working on a list of treatment options global to all forms of Dysautonomia in the Health Pages that might be helpful to you.

Dysautonomia and Autonomic Dysfunction Treatments:
- http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Treatments/show/171?cid=196

Further Reading on Dysautonomia and Autonomic Dysfunction:
- http://www.medhelp.org/health_pages/Neurological-Disorders/Further-Reading-on-Dysautonomia/show/696?cid=196
Comment
Cancel
492869 tn?1285022533
Comment
Comment
Submit Comment
726204 tn?1285879778
Hi, below is a link to a website with info on POTS:

http://circ.ahajournals.org/cgi/content/full/117/21/2814#TBL1189801

and a link to a treatment table for the different forms of POTS:

http://circ.ahajournals.org/cgi/content/full/117/21/2814/TBL2189801
Comment
Cancel
726204 tn?1285879778
Comment
Comment
Submit Comment
Avatar universal
I created a website   http://www.potsinfo.com    which has YouTube videos of others with POTS as well as videos from the Mayo Clinic, etc. There are also links to other website discussing POTS as well as doctors that treat it.

Meds work different for different folks. However, I have had feed back that the special exercises by Dr. Levine are really making a HUGE difference so folks can get off the meds:
Dr. Benjamin David Levine - Cardiologist Dallas TX
IEM, 7232 Greenville Avenue Suite 435,
Dallas, TX 75231 -
(214) 345-4619
Website: http://www.texashealth.org/body_secure.cfm?xyzpdqabc=0&id=2322&action=detail&ref=3463

I also recommend the book  From Fatigued to Fantastic by Dr. Jacob Teitelbaum.

Please note that I am not a doctor or nurse, just a mom helping her son deal with it and a mom having to read a lot. I created POTSinfo.com to both provide a quick reference place for me as well as a link to give people who thought my son "looked healthy".
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
560501 tn?1383616340

  Thanks for the Web Site....

~Tonya
Comment
Cancel
560501 tn?1383616340
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources