What kind of information in particular are you looking for? In the world of Dysautonomia, treatment is usually symptom based. Unfortunately, there is no one treatment that is helpful to all H-POTS patients. We are working on a list of treatment options global to all forms of Dysautonomia in the Health Pages that might be helpful to you.
I created a website http://www.potsinfo.com which has YouTube videos of others with POTS as well as videos from the Mayo Clinic, etc. There are also links to other website discussing POTS as well as doctors that treat it.
Meds work different for different folks. However, I have had feed back that the special exercises by Dr. Levine are really making a HUGE difference so folks can get off the meds:
Dr. Benjamin David Levine - Cardiologist Dallas TX
IEM, 7232 Greenville Avenue Suite 435,
Dallas, TX 75231 -
I also recommend the book From Fatigued to Fantastic by Dr. Jacob Teitelbaum.
Please note that I am not a doctor or nurse, just a mom helping her son deal with it and a mom having to read a lot. I created POTSinfo.com to both provide a quick reference place for me as well as a link to give people who thought my son "looked healthy".
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