Dysautonomia (Autonomic Dysfunction) Community
Postural Orthostatic Tachycardia Syndrome DOCTORS
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Postural Orthostatic Tachycardia Syndrome DOCTORS

My daughter-in law has POTS. She and my son have been looking for a doctor in California, preferrably So. Cal. who specializes in POTS (Postural Orthostatic Tachycardia Syndrome). Pleas, if anyone knows of a doctor please pass the information onto to me so I can pass it onto them. She suffers so much!  Thank you

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Any EP Cardiologist (electrophysiologist) at a big teaching hospital should be able to handle POTS these days. If you're not satisfied with the first doctor you see, try a different doctor. It can sometimes take until the third or fourth doctor you try before you find one you click with. Once you get on a good steady plan of care from a specialist, typically you will only see them once every six months to a year for follow up and your PCP will take over following your case for ongoing treatment.

If it is a particularly complex case and full autonomic testing is needed, you will have to travel at least as far as Mayo Arizona. They have many but not all autonomic testing available there, and it is the closest autonomic clinic to your location. There are none in California, unfortunately. If you want all of the tests available you'll have to travel as far as Cleveland, OH for Cleveland Clinic or to the Mayo in MN. However, it is unlikely that she will require this level of testing so make sure you exhaust your local resources first.

Best wishes,
heiferly.
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Heiferly
Columbus, OH