Hello everyone, my name is Riss and I'm 19 years old. The past week or so has been a whirlwind for me. My story starts like this:
At the end of May, I came home after visiting my boyfriend for a week. During that visit, I had contacted a sore throat, but I'm not sure if that is related to the problem or not. I came home on a Monday and my sore throat symptoms were gone. On Thursday, I woke up to go out to eat with my mom and siblings, but I felt horribly sick as we left. At the restaurant, I threw up 2 times and threw up even more afterwards. It was very abnormal for me because normally when I get sick, I throw up once and then go about my day. This time was different because I could not keep anything down. On top of that, I was having occasional hot flashes after throwing up. The 2 days following that incident, I ate a little bit, but I still felt very weak. I mostly just stayed in bed. On Saturday night leading into Sunday morning, I was just sitting in my bed skyping my boyfriend and felt something very abnormal happen. As soon as we hung up, I noticed that my heart was beating fast. Very fast. As if I had just got done running a marathon fast. I was very confused and very scared. Why was this happening? I was just sitting down. My heart had never done this before. Was I dying? Was I about to have a heart attack? I told myself that it was probably just because my boyfriend and I had a fight that I felt this way, and tried to go to bed. I woke up a few hours later, Sunday afternoon and my heart rate was still very fast. My left arm was feeling weak compared to my right arm and I felt a little dizzy with stiffness in my neck and shoulders. Especially when shifting positions. I googled symptoms and felt that maybe I was experiencing a blood clot, since I take birth control, but I didn't have any redness or warmth in my arm or neck. Again, I kind of shrugged it off and went back to bed, intending to tell my parents the next day if it persisted. I woke up Monday morning feeling the same way, but it felt worse. I got up to go use the bathroom and I felt shortness in breath and almost wanted to faint. My legs were wobbly. I paniced and called my dad. When he came to see what I needed I asked him to feel my heart to see if he felt like it was beating abnormaly, he said that it felt rather fast and that I should call my mom, who is a nurse, and ask her about it. My mom made a doctor's appointment for the next day, as she didn't feel as if it was serious enough to go to the emergency room about. She brought home a blood pressure monitor and told me to take my blood pressure every hour. I did. It was low. It also said that I had an irregular heartbeat.
While at the doctor's I kept contemplating what had happened. I just didn't understand. I was 19 and, for the most part, healthy. I walked everywhere as excercise. I swam in high school and did various other activities such as choir and band. I had no previous heart trouble. I had an EKG done on my heart during high school after I had an incident while swimming. The EKG came back fine and the incident was confirmed to be just an attack of athletic enduced asthma. I had seziures as a child, but outgrew them later on, and I was diagnosed with anemia, social anxiety, depression, and bipolar. I had occasional occular migraines. Other than that, I was a fine, normal, functional teenage girl. Heart disease does run in my family, but I didn't think that I'd be at risk so young. I had cut back on eating fast food during high school, and I didn't really smoke except for the occasional hookah. I wasn't a heavy drinker, despite the fact that I went to a party school, and I was not heavily using drugs either. It just didn't make sense to me why I would be having this heart trouble, and everybody else around me, who were doing way riskier things with their body, were perfectly fine. The doctor listed to my heart and determined that I had a heart murmur, something that I had never had before and sent me to get admitted into the hospital overnight for further testing and observation. At this point, I could hardly even walk without my mom's assistance and had to be wheelchaired into the hospital.
Once at the hospital, they attached a heart monitor to my chest and took some blood work. I noticed that the heart monitor mostly showed a stable 80-90 heart rate, but whenever I would get up to use the bathroom, it would jump to 115-120. The blood work came up fine, so an electrolyte imbalence wasn't causing this. I ate my food and drank plenty of water hoping to re-hydrate myself. The next morning, I was ordered to get an echo, a chest x-ray, and a tilt table test. The tilt table test showed that whenever I stood up, my blood pressure would drop slightly, but my heart rate would skyrocket for a little bit, then go back down. The cardiologist came in to look at the results, but he didn't say much about a diagnosis. He just said that I needed to increase my salt intake in my diet and drink more fluids. O...kay... I did that for the rest of my stay in the hospital and they discharged me later in the evening. By this point, I was somewhat able to walk without assistance.
It's been 5 days since I've left the hospital and over a week since the sickness/heart trouble started. I've been drinking water and eating salty foods, just like the doctor said. We still do not have an exact diagnosis, but my mom did a google search a couple nights ago and came across a few articles on Pots Syndrome. We read it together and the symptoms do sound rather similar to mine. I don't have all of the symptoms, but some of them are present (heart rate, dizziness, pain/stiffness in arms and neck). Since drinking more water, some of my abilty to function has improved. I can walk without assistance and stand, though not for long periods of time. The dizziness has decreased a little bit both when I lay down, sit, and stand, though I feel it more when I stand. The heart rate still goes up while I'm standing, but otherwise, it hasn't been as much of a nuisance. The numbness and stiffness is still there, but there are times where it goes away and I cannot feel it. It's hard to tell without an official diagnosis, but Pots syndrome does sound like a very strong contender for what is going on with my body.