Upset

[angeldk]

The past few days have been horrible and please forgive me but I need to vent... I've been dealing with this whole neurocardiogenic syncope/pots and trying to keep high spirits despite the fact that I feel it's starting to take over my life. They have put me through numerous medications without any relief...I'm still passing out quite frequently and I'm just so frustrated. Beta blockers don't seem to hold my heart rate down and stop it from taching up high enough to make me pass out...blood pressure isn't an issue until the heart rate drops so things to hold my blood pressure up haven't helped either.( I tach up into the 150s+ out of no where and then drop into the 30s 40s, which is what makes me pass out). Then to top it off, I went to see an EP today and he was amazed at my age...while I don't mind the joking in good sport, I felt so uncomfortable. He made it sound as if I was the youngest patient (I'm 23) he had seen in ages. He just kept bringing that up. And I believe this is almost a direct quote...he hasn't paced anyone so young and hed feel really anxious about doing so, even though end of the road if nothing works would be a pacemaker. All I could think was "GREAT"!!! He took me off all my meds and put me on Florinef, which even that I'm afraid to take now. He wants to see my ankles swell up a bit then he'd feel better to proceed to something else. I'm just so upset. I came home and cried. I've been through Midodrine, Atenolol, Bisoprolol, Paxil and now Florinef. Yet, he really has the face to tell me what wow, it'd be something to pace someone so young...I'd be so anxious about it. I felt like telling him, THANKS...Thanks ALOT! Like I don't feel terrified because they keep bringing up the fact that I might need a pacemaker and you just had to go and scare the life out of me more.
I'm sorry to have gone off...but I'm just so tired I can scream. :(
I don't know what to do at this point...my spirits are so low.
Thank you for letting me vent and again I'm sorry.

[margypops]

I wanted to let you know I read your Post and whilst I am not going through what you are I wanted to let you know that I read your post and sympathise as I have other Issues and its tough isnt it trying to stay strong when you dont feel it. It is good to come here to vent and release those pent up feelings, I find I cannot do that with my Family and have to go it alone so I come to Med Help to be of use to others.My Daughter is going through some similar problems and as she is pregnant she cannot take the Beta Blockers they have said she should take, she has to wait till after the baby so she has these scary dreadful Palpitations and running in and out of the ER, It is possible that the Meds (whilst I do appreciate you have to take them) make you feel worse. Come back and Vent again I will look out for you.