DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
What doctor do I see? Specialist

What doctor do I see? Specialist

I did the tilt table, diagnosed with NCS and now feel like I have been dropped bc they dont know how to treat it? I am pretty angry they didn't even give me a vist with the dr. I don't understand. I faint more than 5 times a day and Im told to go to the ER who sends me back to Cardiology. Im exhausted. Its only taken 10 years to get a diagnosis. I definently think I have POTS. In fact they are trying to tell me that haven't received test results. They called the DR and told them asap. I understand hw might know what to do but its been a month.  Ive been so miserable and I need help. Im not able to take care of myself anything and work. Which is enough to constitute an emergency. I have had two concussions and I dont know how to get the help I need. Any Advice? I need it. Thanks
Tags: POTS, NCS
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I guess you might have someone take you to the outpatient medical records department at the facility where you got your tilt table test and sign a release to get a copy of your results and then drive over to where they say they don't have the results, hand it to the front desk and ask them to make a copy and give it to the doctor.  Then take your copy home in case they claim later the doctor still didn't get it.  But a month- if it were me, I'd be calling every day of the week they were open (when I remembered to) and leaving messages for the doctor... a lot of times that squeaky wheel gets the grease.  

I believe neuro-cardiogenic syncope is a separate distinct condition from POTS, though a certain percentage of those with POTS do faint.  I hope someone else on here will know of a specialist in dysautonomia in the state of Florida they can tell you about.

I've seen wearing a helmet recommended on here by someone who faints a lot.  I feel badly for you guys suffering from serious injuries with fainting.  Some people find help from pretty frequent trips for IV fluids.  I hope in addition to all you're suffering, you don't have an iron deficiency compounding the problem!
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