Dysautonomia (Autonomic Dysfunction) Community
What to expect
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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What to expect

Since I am new at this and have not had any formal testing done, what can I expect when I start going to a specialist?
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612876_tn?1355518095
Are you planning on going to an autonomic specialist like Dr. Grubb or Dr. Julian Stewart, to one of the autonomic clinics for testing like Mayo/CC/Vandy, or trying to find a cardiologist/neurologist at a major teaching hospital who has some knowledge in the field?

If you are going to Mayo/CC/Vandy, these threads are ones I know of that include discussions regarding those hospitals (the CC ones discuss the autonomic testing specifically):

Mayo--
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Gastroparesis/show/939878
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Anyone-been-to-Mayo--MN/show/972060

Cleveland Clinic--
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Cleveland-Clinic-Syncope-and-Autonomic-Disorders-Clinic/show/1004815
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Results-from-CC-Testing/show/1036950

Vanderbilt--
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Anyone-gone-to-Vanderbilt/show/799225

Also--
http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Where-have-you-gone-for-diagnosis-treatment/show/952807

I'm working on gathering some information for another member right now, but please feel free to give me more details on what type of specialist/clinic you are being referred to and what questions you have and I'll get back to you with more targeted answers!  


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Avatar_f_tn
Don't know for sure yet.  Most likely, Vandy.  I will read these feeds first and get back to you on more questions. Thanks
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