DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
child mild dysautonomia,Mayo clinic diagnosis brain heart stomache not that compl...

child mild dysautonomia,Mayo clinic diagnosis brain heart stomache not that complicated or is it?

One center in NYC for pure genetic dysautonomia 100%jewish,We are 100% My child had and still suffers from Mild Dysautonomia,Heart Brain Stomache,Pain nerves vomiting chills a total breakdown of systems.The CAUSE,CHRONIC EBV,CHRONIC VIRAL OVERLOAD?
Related Discussions
2 Comments Post a Comment
Blank
492869_tn?1285022533
I'm not sure I fully understand your post, but have you gone to the Langone Dysautonomia Center in NYC?  Were you, or your child diagnosed with a genetic Dysautonomia?

Further information on Riley-Day Syndrome (also known as Familial Dysautonomia):
http://www.medhelp.org/medical-information/show/444/Riley-Day-syndrome

Further information regarding other genetics relating to Dysautonomia:
http://www.medhelp.org/health_pages/Neurological-Disorders/Genetics-Relating-to-Dysautonomias/show/832?cid=196

MedHelp's Epstein Barr Virus (EBV) Community:
http://www.medhelp.org/forums/Epstein-Barr-Virus-EBV/show/251
Blank
612876_tn?1328033817
As politely as possible, can I ask you to resubmit your post in the form of sentences so that we can understand what you are stating and what you are asking?  I'm not trying to be offensive whatsoever, I just honestly cannot comprehend what your meaning is from the way you posted it here.

Namely:

What about the center in NY?  Or are you working with Mayo?

What about heart, brain, stomach, pain, nerves, and vomiting, specifically?

Are you saying that you think your child's dysautonomia had a viral onset?  Or are you suspecting FD/Riley-Day due to Ashkenazi Jewish heritage and the severity of the autonomic involvement?  

I would love to offer more support if you could clarify your post.  Thanks!
Blank
Post a Comment
To
Comment
Post A Comment
Go
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
MedHelp Health Answers
Submit
Top Arrhythmias Answerers
1124887_tn?1313758491
Blank
is_something_wrong
Oslo, Norway
612876_tn?1328033817
Blank
Heiferly
Columbus, OH
875426_tn?1325532016
Blank
LivingInHope
Avatar_f_tn
Blank
beema36
Wichita, KS
Avatar_f_tn
Blank
CHRISTYDRAKE
St Louis, MO
Avatar_f_tn
Blank
oldtrout466
United Kingdom
RSS Expert Activity
1741471_tn?1336957856
Blank
LIVE WEBINAR TOMORROW!-SUPER BODY, ... Blank
May 22 by Michael Gonzalez-WallaceBlank
2126606_tn?1335910182
Blank
Fibromyalgia Awareness
May 11 by Clare Waismann Kavin, RASBlank
2126606_tn?1335910182
Blank
Opioid-induced hyperalgesia reduces...
May 03 by Clare Waismann Kavin, RASBlank