One center in NYC for pure genetic dysautonomia 100%jewish,We are 100% My child had and still suffers from Mild Dysautonomia,Heart Brain Stomache,Pain nerves vomiting chills a total breakdown of systems.The CAUSE,CHRONIC EBV,CHRONIC VIRAL OVERLOAD?
As politely as possible, can I ask you to resubmit your post in the form of sentences so that we can understand what you are stating and what you are asking? I'm not trying to be offensive whatsoever, I just honestly cannot comprehend what your meaning is from the way you posted it here.
What about the center in NY? Or are you working with Mayo?
What about heart, brain, stomach, pain, nerves, and vomiting, specifically?
Are you saying that you think your child's dysautonomia had a viral onset? Or are you suspecting FD/Riley-Day due to Ashkenazi Jewish heritage and the severity of the autonomic involvement?
I would love to offer more support if you could clarify your post. Thanks!
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.