Aa
Aa
A
A
A
Close
Avatar universal

child mild dysautonomia,Mayo clinic diagnosis brain heart stomache not that complicated or is it?

One center in NYC for pure genetic dysautonomia 100%jewish,We are 100% My child had and still suffers from Mild Dysautonomia,Heart Brain Stomache,Pain nerves vomiting chills a total breakdown of systems.The CAUSE,CHRONIC EBV,CHRONIC VIRAL OVERLOAD?
2 Responses
Sort by: Helpful Oldest Newest
612876 tn?1355514495
As politely as possible, can I ask you to resubmit your post in the form of sentences so that we can understand what you are stating and what you are asking?  I'm not trying to be offensive whatsoever, I just honestly cannot comprehend what your meaning is from the way you posted it here.

Namely:

What about the center in NY?  Or are you working with Mayo?

What about heart, brain, stomach, pain, nerves, and vomiting, specifically?

Are you saying that you think your child's dysautonomia had a viral onset?  Or are you suspecting FD/Riley-Day due to Ashkenazi Jewish heritage and the severity of the autonomic involvement?  

I would love to offer more support if you could clarify your post.  Thanks!
Helpful - 0
492869 tn?1285018933
I'm not sure I fully understand your post, but have you gone to the Langone Dysautonomia Center in NYC?  Were you, or your child diagnosed with a genetic Dysautonomia?

Further information on Riley-Day Syndrome (also known as Familial Dysautonomia):
http://www.medhelp.org/medical-information/show/444/Riley-Day-syndrome

Further information regarding other genetics relating to Dysautonomia:
http://www.medhelp.org/health_pages/Neurological-Disorders/Genetics-Relating-to-Dysautonomias/show/832?cid=196

MedHelp's Epstein Barr Virus (EBV) Community:
http://www.medhelp.org/forums/Epstein-Barr-Virus-EBV/show/251
Helpful - 0
Have an Answer?

You are reading content posted in the Autonomic Dysfunction Community

Top Arrhythmias Answerers
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Are there grounds to recommend coffee consumption? Recent studies perk interest.
Salt in food can hurt your heart.
Get answers to your top questions about this common — but scary — symptom
How to know when chest pain may be a sign of something else
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.