You can try the dinet.org site. They have a listing. I couldn't find any docs, so I just called the main hospitals and pleaded with someone to help me find a doc or suggest one. Some of the hospitals were very helpful with giving information. Depends on who answered the phone that day. But they were able to recommend docs close to me, but they were still very far away. Good luck. Sorry, wish I had more infomation.
Unfortunately, I am not aware of any specialist in that area specifically. However, I would recommend beginning with a referral to either a Cardiologist or Neurologist in a local academic teaching hospital as these specialists are most likely to have up-to-date information. Additionally, our Dysautonomia Specialists health page may be helpful to you.
I have thoroughly searched for an autonomic doctor anywhere in LA and was not successful. No one in LA had autonomic testing equipment either. We went to UT Southwestern in Dallas which should be only an hour or so from you. They were able to test my daughter and diagnose her but have not really helped her other than that. It was just good to at least get the official diagnosis.
My daughter is in college in Shreveport, LA studying Neuroscience with the hope of becoming a Pediatric Neurologist specializing in Autonomic Disorders. She has POTS, Autonomic Neuropathy, Mitro Valve Prolapse, and a mild form of Ehlers Danlos. She suffers daily but fights to continue in her education. We don't know if she will make it through medical school, as you all know, her symptoms may not allow such a rigorous schedule but she won't give up easily.
We live in the New Orleans area, so Dallas was a 9 hour drive for us but it was worth it to get the diagnosis. Now we just need an effective treatment. She was diagnosed 2 yrs ago and still no meds have helped for any length of time.
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.