has anyone here been to the Cleveland Clinic for NCS/fainting?

[sconesail]

Hi All,

It has been a while since I lasted posted here- so let me give you a rundown on the current situation.

I began fainting regularly in 2008 after a severe bout of flu. At first, it only happened once or twice a week, then once or twice a day, now it happens anywhere froom 5-15 times a day. I am not out very long, usually pop up pretty quickly after fainting. The only exception to this occurs when I faint and then begin dry heaving- during these episodes, I out for a minute or two. I have severe migraines since age 17, now 30. Fainting makes the headache a lot worse.

-I have seen several cardiologists about this problem. I had a loop recorder implanted in 2010 by Dr. Grubb. The only abnormality is tachycardia which occurs when I faint.

- My current cardiologist has basically given up on me and told me that "It is all in my head" because I didn
t respond well to the two meds she tried. (Bystolic, klonopin, and pristiq.)

I am going to the Cleveland Clinic in a few weeks to see if they have any insight or new ideas about this issue. Has anyone else been there? If so, what was your experience?

Thanks,
sconesail

[Heiferly]

I was overall pretty pleased with CC as well.  I'm headed back up ASAP to do a more multi-disciplinary evaluation and probably repeat the testing I did last time as well.  Are you seeing Dr. Jaeger or someone else?

[Bromley]

I went to the clinic and was happy as well. Doctors have to be looked after no matter where you go, but these guys are reputed to be among the best, making your job to look after yourself easier.

In addition to reputation, I also found the support staff to be especially qualified and helpful.  

[jonesnc]

I went to the Cleveland Clinic and was very pleased with them.  They are very thorough and helpful.