I have been diagnosed with CFS and POTS, most people that have POTS tend to have their blood pressure drop when they stand up. but in my case my BP goes up 20-30 points. What can I do about this? I get a lot of pressure in my neck and head when this happens., so is hard to be out of bed and try to have a normal life. please help!!!
A Mayo clinic website states POTS "is the most common form of orthostatic intolerance without associated orthostatic hypotension."
You might see if your doctor is willing to do a laying and a standing norepinephrine level on you to see if you have the hyperadrenergic form of POTS. My own blood pressure goes up after a short bit of standing. I have never had this testing of laying and standing norepinephrine, but I have had my norepinephrine and normetanephrine levels be elevated above normal range before. I think I have the hyperadrenergic form of POTS. My heart rate when I stand up without sitting first after I have been in bed at night this year on a holter monitor would go up in the 140s to its peak level in the 150s. The year I was diagnosed with POTS (2004), I was iron deficient and my heart rate was going as high as the 160s.
I haven't really found much help for this increase in blood pressure problem (tried verapamil), but what I can say is if it is at all possible, don't give up on walking, even if it slow walking, because deconditioning can just exacerbate the problem, I believe.
Do you have a cardiologist or neurologist who is treating you for your POTS? There is a significant subset of POTS patients that do have a rise in BP in upright postures. (It is actually a myth that orthostatic hypotension is part of the POTS diagnosis; see here: http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia--POTS-Diagnostic-Criteria/show/1011?cid=196 ) There are different treatments that can be targeted to your particular case of POTS, including this aspect. What treatments/medications are you taking now and how are/aren't they working (including side effects)? What have you tried in the past and how did/didn't that work?
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.