Dysautonomia (Autonomic Dysfunction) Community
kelly 1258
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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kelly 1258

   I have been thinking about you and your daughter.
I hope that she is getting better w/ each day.

Take Care,
~Tonya
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STill not improving going to up abilify. She had a change on EEG. Anyone ever have a change on this test?
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  What kind of change?? From like a totally "Normal"  EEG to an "Abnormal" one?
what are the deatials?

    So she stopped taking the Cymbalta and now is on Abilify???  Is she in the hospital as of now or are you caring for her at home?

    Oh my heart goes out to you both <3.........
~Tonya
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As a recently diagnosed with D person, it is heart breaking thinking this could happen to a child. I will be praying for you both! Also I commend both you and her Drs as I had blood drawn for 10 years and all symptoms minus fainting yet I was always told depression. You have been an incredible parent to believe her and push through until she got a diagnosis!
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