Dysautonomia (Autonomic Dysfunction) Community
looking for help
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

looking for help

Hi,  I've been waking up in the middle of the night with parasthesias all over my body.  They go away after I am moving around for a while.    I have anemia, and I have orthostatic hypotension.  I'm 30 and this stuff started to happen when I dropped out of grad school and had a period of homelessness a few years ago.    I have an intolerance to gluten and. Whenever I get stressed it gets worse and I have bad diarrhea and start losing sensations all over my body.   I've had periods where I couldn't eat vegetables because my nervous system in my stomach wouldn't pass the fiber into my small intestine and I got horribly sick from it.  

I don't know what I have and I don't know what I should b doing.  The doctors haven't been much help besides my GI saying that he thinks it's a "Autonomic nervous system disorder."  So here I am.

Any advice would be appreciated.  

Thank you

Aaron
875426_tn?1325532016
Welcome!

What kind of anemia do you suffer from?   What labs are abnormal?  Have you seen a neurologist regarding the parasthesia or has the doctor told you it is due to the anemia?  

If you are suffering from orthostatic hypotension after having diarrhea, it is likely that you are dehydrated.

Have you considered making an appointment at a center/with a doctor where they specialize in dysautonomia?  Here's a list:
http://www.medhelp.org/tags/health_page/24603/Dysautonomia/Dysautonomia-Specialists?hp_id=717


Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Arrhythmias Answerers
1124887_tn?1313758491
Blank
is_something_wrong
Oslo, Norway
612876_tn?1355518095
Blank
Heiferly
Howard, OH