Dysautonomia (Autonomic Dysfunction) Community
low blood pressure?
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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low blood pressure?

hi! i was diagnosed with vasovagal syncope. but i feel dizzy almost everyday in the morning after breakfast , sometimes feel dizzy the whole morning and sometimes the whole day, sometimes after eating sweets,sometimes after mild exertion, sometimes get dizzy with stress.my blood pressure is mostly 90-100/65-70,pulse 90-100 (sitting) i'm 35 years old.female skinny.
when i feel that way, i  feel my eye movement very slow and heavy when i lookk around, and it gets worse with head movement, i guess thats what makes me dizzy, its hard to focus on far objects and have this kind of drunk feeling, i've been wondering if my eyes are lacking of blood in those moments and they are weak, thats what i feel, but my bp is not that low, i also  have these pin prickling sensations in all over my body, not all at once but one at a time, about five a day, my low back is really really sort and is hard for me to stand quickly, i walk like a n old woman a little bit, a little hunchbacked? , my heels hurt too when i stand for long time and i also feel something weird in my big toes something like tingling maybe? ,my skin hurts to touch sometimes, and got this strong smell sensitivity, and lack of taste sometimes.
i'm skinny , 1.70m and weigh 56k , my bp doesn't change much during the day. i've been feeling this way for about five years, and my glucose levels are in the 90's most of times.could my blood pressure be causing me feel that bad even when it is not so low?, is this  dysautonomia? or could it be something else? thank you!
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612876_tn?1355518095
I would ask for event monitoring from your cardiologist.  Holter monitoring is very brief, and you'd likely be more apt to "catch" an episode of syncope/pre-syncope on event monitoring.  There are also devices called implantable loop recorders that can be implanted just under the skin in the chest temporarily in an outpatient surgery for longer-term monitoring to "catch" syncope episodes and see what the heart is doing during these episodes.

It does seem odd that your blood pressures/HRs are all within the normal range.  You may want to ask for a copy of your readings from during the tilt table test to find out what your HR and BP did when you actually fainted; you'll also want to know if medication was used during any portion of the test to stimulate your heart, and if so, if it was at that point that you fainted.  

It's important to know for sure that you're getting the correct diagnosis and that cardiac causes for syncope (and your other symptoms) have been correctly ruled out.  There are some cardiac conditions that can cause quite similar symptoms.  Grubb's article on syncope in the link to our health page I provided above can clarify the difference between cardiac and non-cardiac causes of syncope.

I hope I'm being clear that it's perfectly possible that you do have neurocardiogenic syncope; I just think you're being reasonable in questioning and am giving you some suggestions on things you could look into that would help clarify your diagnosis.  Hopefully your doctor(s) will be happy to work with you to make sure you have the correct diagnosis as treatments will be very different depending on the cause of your symptoms.
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612876_tn?1355518095
What is your standing blood pressure and HR?  (Taken 2 minutes after standing perfectly still, do not fidget/move legs at all during that time, no talking at all during the 2 minutes or while taking your pressure, and keep arm elevated to heart level but AT REST on a table--stack books on top of one if needed to get proper height--for this reading.)

Were you diagnosed with a tilt table test?  What additional testing, if any, was done?

What treatment are you on currently, including both pharmaceutical (over the counter AND prescription medications/supplements) and non-pharmaceutical treatments (lifestyle changes such as dietary changes and durable medical supplies such as compression garments or adaptive equipment)?  What treatments, if any, have you tried in the past but discontinued?

How often (if at all) are you fainting?  (Or having pre-syncope?)  Have you identified your triggers (certain postures, physical exertion, heat, etc.), and to what extent have you been able to modify your lifestyle to work around or avoid these triggers?

Sorry about all these questions, but I think I will better be able to address your questions with more information about your symptoms and treatment.  All in all, I don't think that what you're describing sounds unusual for dysautonomia, per se.  Hopefully I can give you more targeted information if I know a bit more about you.  In the meantime, you may want to look through the reading materials we have bookmarked in our health pages to find the ones that apply to you.  (They cover various forms of dysautonomia so not all will be appropriate to vasovagal—aka. neurocardiogenic—syncope.)

http://www.medhelp.org/health_pages/Neurological-Disorders/Further-Reading-on-Dysautonomia/show/696?cid=196
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560501_tn?1383616340

  Hello and Welcome to the Forum :)

   I too have EXTREMELY LOW B/P  (NCS).    Like 74 / 40's and my highs are in the
upper 90's / 60's - 70's....And too am very Dizzy all the time.  May be from my AD
or from the MS...Could be both..Lol    My Pulse Pressure is Low also.....Which is weird also!

   If I stand for to long or sit for to long (legs dangling) I will either get Pr-Syncope or Pass out completely.......No Fun I know!  Best thing to do is when you start to feel like that lay down and put feet up.  

   The reason you feel like that too after you eat is because the Autonomic Nervous System has to do w/ our Heart Rate, B/P, Resperation, digestion.  Actually, The term 'dysautonomia' is not a diagnosis, but rather it is a reference to a group of disorders in which there may be one or more very different problems with function of the autonomic nervous system. which again, refers to what I just noted above.

   I know it kinda sounds confusing but you will "get It" more and more the more you read about it :)  That would help to explain the SX  you get after you eat  

   One thing I find Interesting is that from much reading....Usually, when lying (prone) the B/P while be slightly raised.....NOT in my case!  Thats when mine likes to hover around the 70's / 40's or 50's   with a lowered Pulse Pressure.  would you find that to be true for you also? When you are laying down does your B/P stay low?

    Again, welcome to the Forum :)  I hope that we will be able to help with information that will satisfy what you need to know.

Take Care,
~Tonya

  
  
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Avatar_f_tn
hi! thanks for answer me, Yes i had the tilt test done,and came back positive for vasovagal syncope, i had the glucose tolerance test done,and it came back normal, i had blood tests done,everything came back normal, i had MRI done last year, and came back normal, holter monitoring, two years ago, came back normal,.and so! everything comes back normal. but i did faint in the tilt test. well, i'm not currently taking any medication, my cardiologist prescribed a treatment for syncope but it didnt work since my dizziness was getting worse. i've fainted about twenty times in my life, that means it is not quite often, but i do have presyncope very often, like twice a week maybe?, my trigggers are hunger, exertion, heat, stress, oily food, fruit, bending and then standing, picking up things from the floor,home cleaning.my bp readings are lying 5 minutes 105/67  81, standing 2 minutes 107/78 88, and 5 minutes 106/75, i guess my bp doesnt bother if i´m lying or standing, weird! and thats it, any ideas?
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Avatar_f_tn
thanks tonya , i really aprecciate your time and answers. and well my bp is lower in the morning i guess, since it hardly reaches the 100, i did my lying and standing test at night when i feel much better and it certanly came back with higher numbers, but my bp is weird also, mine doesnt gets lower when lying , but it just seems to be the same.. thats, just weird also.thanks a lot for your information!
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Avatar_f_tn
Yes you sound like me.Thats neurocardiogenic syncope.Its all horrible,but normal.I actually pass out and have seizures with mine.Form of dysautonomia.Look it up online
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612876_tn?1355518095
I would ask for event monitoring from your cardiologist.  Holter monitoring is very brief, and you'd likely be more apt to "catch" an episode of syncope/pre-syncope on event monitoring.  There are also devices called implantable loop recorders that can be implanted just under the skin in the chest temporarily in an outpatient surgery for longer-term monitoring to "catch" syncope episodes and see what the heart is doing during these episodes.

It does seem odd that your blood pressures/HRs are all within the normal range.  You may want to ask for a copy of your readings from during the tilt table test to find out what your HR and BP did when you actually fainted; you'll also want to know if medication was used during any portion of the test to stimulate your heart, and if so, if it was at that point that you fainted.  

It's important to know for sure that you're getting the correct diagnosis and that cardiac causes for syncope (and your other symptoms) have been correctly ruled out.  There are some cardiac conditions that can cause quite similar symptoms.  Grubb's article on syncope in the link to our health page I provided above can clarify the difference between cardiac and non-cardiac causes of syncope.

I hope I'm being clear that it's perfectly possible that you do have neurocardiogenic syncope; I just think you're being reasonable in questioning and am giving you some suggestions on things you could look into that would help clarify your diagnosis.  Hopefully your doctor(s) will be happy to work with you to make sure you have the correct diagnosis as treatments will be very different depending on the cause of your symptoms.
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Avatar_f_tn
65% of times I faint after swallowing coffee, water etc. there is no patteren for the rest of times.  I have fainted 4 times this year, twice sent to hospital after not recovering for a few minutes. those time i was in and out of consciousness for about 30 minutes and i also vomited after passing out. have been to a cardioligist, neuroologist and numerous other physicians, none have been able to diagonose. I first fainted when 12 years old. the worst is none have ever heard of anyone swallowing then fainting.  I really would like a answer.
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612876_tn?1355518095
I'm sorry your post didn't get any response for so long.  We recommend that people start a new post of their own when they have a question, rather than tagging on to the bottom of an outdated thread like this one that is months old.  (In part because, as you can see, new posts will get the attention they deserve while a comment on a "dead" thread often gets overlooked entirely.)

Normally I wait to respond to a post until the person has gone ahead and reposted their question as its own thread (you can do so by clicking the green "Post a Question" button at the top of the page), but I am going to send you a private message as well.  I hope you receive it.

Thanks!
-Heiferly
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