Dysautonomia (Autonomic Dysfunction) Community
medications?
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

medications?

Whenever I browse forums on dysautonomia, I seem to find people coming off medications such as midodrine and fludrocortisone. I know that we all have different conditions, causes, degrees of severity (and I've been through dozens as we've tried everything to try to work out what's been going on), but it is depressing as I'm now running out of options at this stage as virtually everything causes another problem to get worse (e.g. cannot wear compression hose due to Raynaud's/numbness in feet, cannot fluid load becuase of hiatus hernia, salt causing terrible oedema etc). I get the impression that these medicines aren't really that effective for controlling these problems, particularly for those of us who have circulation problems caused by Ehlers Danlos.

My specialist, who dx'd the EDS, blood pooling and POTS has refused to offer me any treatment until I've had a full range of tests, which could be many months down the line and quite frankly I'm not really convinced it will be worth the wait, other than to satisfy his curiosity. His only suggestion was to take more salt and fluid (no suggestions about dosage), which has had mixed results, but which will be very hard to continue with because of the hernia.
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Arrhythmias Answerers
612876_tn?1355518095
Blank
Heiferly
Columbus, OH