Dysautonomia (Autonomic Dysfunction) Community
not that was needed
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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not that was needed

but finnnallly today got a SMall  validation.
all thhes years i have been ill and never in the doctors office my stats do what they do at home. but   today finally thhey saw my h.r. rise standing. I had wished my b.p. drop but i   take it i had my med not long prior.  it always is weird to want that. i never did need validation because i have been lucky my doctor take my word and listen to me when my test    results have  not . but it still felt good to have them see.

anyways , it  does feel good to have validation even in some little foorm.
doc  increaace my florinef  hopes it better. Or to try something else.

My doctor iis a cardiologist , and i asked whhat he dx (siince i just never read his notes) he termed dysautonomia.  I asked POTS? He said, well, it looks just like POTS but that since i have it second from neuro disase. That POTS  they term when they would not know why they have it.

i   totally forgot tto discuss the narrowing pressure pulse, but don;t think it  would maaake the differnce as now.
I am increasing florinef  an hopes it makes more  difference.

I really am sorry everyonne here must feel sommething like me. It iis a tough way to do life.
thanks and    take care,  amo

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560501 tn?1383616340

   Agreed!  Validation is GOOD!  In fact VERY GOOD!
We all need that.  Please forgive me for asking..I can't remember anything....what Neuro disease is it you have?...MS right??

    Good luck on the increase of Florinef...I hope it levels things out for you!
Yes! Tough way to do life indeed my Friend!   I don't know if I will ever get to that acceptance phase from either the MS or the NCS!   I just am not accepting this!

    Does that make me in denial???   Absolutley NOT!  In fact I am far from Denial.....I just don't want to accept it..  :)   Hope that makes sense. It does to me!   Lol

Keep us updated on how your med dose upage (is that even a word..ha,ha) goes.

Avatar f tn
hi tonya,
yes, i  have ms. but i  have Cerebellar  Ataxia also, as diseaase, not 'just' a symptom in m.s. (my cerebellum atropies)
Denial  is not always nessecary a  bad thing when at the righ t timing. It can keepp us fighting and going on daily!
The accepting part comes for me merely by thee grace of god, don't they say  keep your enemies   close?? :)
ok and by fact of iincredible support system.
I wll keep in touch on my upage:)
thank you tonay, have a good day, amo
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